azwxman
Distinguished member
- Joined
- Jun 15, 2014
- Messages
- 147
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- az
- City
- tucson
Hi all,
Mark here. Diagnosed on June 2, and got a second opinion from a neuromuscular specialist at University Medical Center (U of A) on the 10th.
I'm 58 today, retired Air Force after 20 years of service and lucky me, spent nearly a year in Saudi Arabia during the first Gulf War (and have already begun to apply for disability at the VA).
I haven't received a diagnosis of the 'type' of onset I have. I have experienced fasciculations essentially over my entire body, cramps in my feet, calves, quads, hands, arms. I have pseudobulbar affect and take Neudexta for that...works great...I really didn't appreciate nearly breaking down in tears at work
My wife is definitely more broken up about the diagnosis than I am...she suspects maybe I'm in denial. She's probably right. Seems kind of unbelievable that after 58 years, great health, staying active, that I'm looking at the loss of my body in the not too distant future. Still, I'm keeping a good attitude as much as I can.
Mark here. Diagnosed on June 2, and got a second opinion from a neuromuscular specialist at University Medical Center (U of A) on the 10th.
I'm 58 today, retired Air Force after 20 years of service and lucky me, spent nearly a year in Saudi Arabia during the first Gulf War (and have already begun to apply for disability at the VA).
I haven't received a diagnosis of the 'type' of onset I have. I have experienced fasciculations essentially over my entire body, cramps in my feet, calves, quads, hands, arms. I have pseudobulbar affect and take Neudexta for that...works great...I really didn't appreciate nearly breaking down in tears at work
My wife is definitely more broken up about the diagnosis than I am...she suspects maybe I'm in denial. She's probably right. Seems kind of unbelievable that after 58 years, great health, staying active, that I'm looking at the loss of my body in the not too distant future. Still, I'm keeping a good attitude as much as I can.