BlueEyesOhio7
Active member
- Joined
- Jun 8, 2014
- Messages
- 83
- Reason
- PALS
- Diagnosis
- 06/2014
- Country
- US
- State
- Ohio
- City
- XXXXXXXXXXX
Hello,
I'm joining this club as of today. My Doc is putting me on riluzole. This is indeed an emotional roller coaster! I was diagnosed in less than a month and I'm reeling from all this. I go from denial to despair. My husband, the same.
This is a VERY upsetting time.
I have this picture in my mind of me sitting on the examining table with my feet hanging off my husband sitting in the chair next to me. The Doc is talking about how they diagnose ALS. My hubby asked about 5 times, “Does this mean she has ALS?” He wasn't ready to say it. The Doc. My husband finally said, “Just give it to me straight, is it ALS?” and the Doc said, “Yes” He said there is one more thing it could be Myeloma. He sent me for a blood test. He said without the blood work he was 99% sure, if the blood work comes back negative – he is 100% sure.
Sheesh, what a ride! I'm exhausted!
Is there any articles posted about coping with this and helping my family cope with it?
Lynne :-?
I'm joining this club as of today. My Doc is putting me on riluzole. This is indeed an emotional roller coaster! I was diagnosed in less than a month and I'm reeling from all this. I go from denial to despair. My husband, the same.
This is a VERY upsetting time.
I have this picture in my mind of me sitting on the examining table with my feet hanging off my husband sitting in the chair next to me. The Doc is talking about how they diagnose ALS. My hubby asked about 5 times, “Does this mean she has ALS?” He wasn't ready to say it. The Doc. My husband finally said, “Just give it to me straight, is it ALS?” and the Doc said, “Yes” He said there is one more thing it could be Myeloma. He sent me for a blood test. He said without the blood work he was 99% sure, if the blood work comes back negative – he is 100% sure.
Sheesh, what a ride! I'm exhausted!
Is there any articles posted about coping with this and helping my family cope with it?
Lynne :-?