Music67
Distinguished member
- Joined
- May 19, 2014
- Messages
- 246
- Reason
- PALS
- Diagnosis
- 08/2014
- Country
- US
- State
- Washington
- City
- Bellingham
Hello everyone!
I got diagnosed with probable ALS today. With me its my weakness of ankle, arm & hand on left side of my body after 2+ years of symptoms. I wear an ankle support most days. My other side feels quite normal. I still feel pretty good, all in all - don't have much loss of energy so far. I walk for 1-1/4 miles each day which keeps me going, I guess. The neuro based part of his diagnosis on my leg reactions to his tapping them with his prong (of all things) and the rest on an EMG of my back - the details of this I am still fuzzy about. His partner neuro suggested I probably have ALS because of fasciculations on both sides of my spine as well as having a low gm-1 antibody number - both of these conditions I am a little suspicious of as far as being strong indicators of ALS but we will see in time. I sure notice that most everyone has a different story to tell in this regard but I am here to say that I support & respect everybody's situation.
I got diagnosed with probable ALS today. With me its my weakness of ankle, arm & hand on left side of my body after 2+ years of symptoms. I wear an ankle support most days. My other side feels quite normal. I still feel pretty good, all in all - don't have much loss of energy so far. I walk for 1-1/4 miles each day which keeps me going, I guess. The neuro based part of his diagnosis on my leg reactions to his tapping them with his prong (of all things) and the rest on an EMG of my back - the details of this I am still fuzzy about. His partner neuro suggested I probably have ALS because of fasciculations on both sides of my spine as well as having a low gm-1 antibody number - both of these conditions I am a little suspicious of as far as being strong indicators of ALS but we will see in time. I sure notice that most everyone has a different story to tell in this regard but I am here to say that I support & respect everybody's situation.