NeedCourage
Active member
- Joined
- Feb 22, 2014
- Messages
- 73
- Reason
- Lost a loved one
- Diagnosis
- 12/2013
- Country
- US
- State
- PA
- City
- SW
Hi again - You were wonderful to answer my first posting and I'm so grateful. I have another question and am having trouble formulating it. I know you will be kind if it's ? (fill in blank).
Like all PALS & CALS, I have been reading voraciously and now have lost any semblance of sanity! So many things to think about and I appreciate the oft stated "do it early" remarks regarding preparedness.
My darling husband is 76; he has always been able to out work, out run, out fish or golf even those 40 years his junior. So far, his only noticeable symptom is an occasional slight limp after a 12 hour work day. (He is retiring very soon.) Anyway... The EMGs and NCVs and MRIs looked worse than he does, and so I'm waiting for the big fall. Here is my question:
Would any of you be willing to share how quickly you went from almost imperceptible health problems to crutches or canes or whatever your first real limitation was. I'm afraid we will wake up one morning and his legs will be useless. Can it happen really really fast like that? I know there is no answer, but there is 'experience' and it would just ease my mind to know what others have gone through.
Questions whirl around in my mind such as should he quit right now or wait? Should we try to sell our two story house immediately and a find a single floor home? and it seems lots of you use vans. Is it a necessity? We will be living on two modest Social Security checks; is it even possible? I could list dozens of considerations just waiting out there - so I want to be smart about this but not make us both crazy.
This is the most scary, lonely, humbling experience I can imagine. Blessings and love to you all as we walk this path - filled with potholes !
Warmly, Nancy
Like all PALS & CALS, I have been reading voraciously and now have lost any semblance of sanity! So many things to think about and I appreciate the oft stated "do it early" remarks regarding preparedness.
My darling husband is 76; he has always been able to out work, out run, out fish or golf even those 40 years his junior. So far, his only noticeable symptom is an occasional slight limp after a 12 hour work day. (He is retiring very soon.) Anyway... The EMGs and NCVs and MRIs looked worse than he does, and so I'm waiting for the big fall. Here is my question:
Would any of you be willing to share how quickly you went from almost imperceptible health problems to crutches or canes or whatever your first real limitation was. I'm afraid we will wake up one morning and his legs will be useless. Can it happen really really fast like that? I know there is no answer, but there is 'experience' and it would just ease my mind to know what others have gone through.
Questions whirl around in my mind such as should he quit right now or wait? Should we try to sell our two story house immediately and a find a single floor home? and it seems lots of you use vans. Is it a necessity? We will be living on two modest Social Security checks; is it even possible? I could list dozens of considerations just waiting out there - so I want to be smart about this but not make us both crazy.
This is the most scary, lonely, humbling experience I can imagine. Blessings and love to you all as we walk this path - filled with potholes !
Warmly, Nancy