Hello Mark; So you are in the vortex too. This disease is like one of those really scary rides at an entertainment park, with lots of ups & downs, spins, wanting to get off but they won't stop the ride. But eventually the longer you ride it the less scary it is, but then it becomes annoying. There are victories in it as well though, so right now just hang on for dear life, scream and cry but it will get easier.
We spend most of our energy now, just living, but we know who our really true friends are, and we now stop waisting time because we know that it is limited.
The PALS & CALS that I have met are some of the most amazing people that I have ever met, and even though they are going through hell they still seem to have time to support each other.
Casey your crack me up, but I also heard that ALS is the nice guy disease. I must admit, since knowing my husband the last 3-4 years, I have never said "you're right" so many times. I hate it! I thought I was the perfect person.
Paulette