Hi Rascal,
First, you're posting perfectly! No problems there.
Absolutely you should see neuromuscular specialist, as these docs are more highly specialized neurologists - and they have therefore typically seen this rare kind of stuff -- e.g., PLS and HSP. I recently saw a "renowned" neuromuscular specialist, who after a )(exhaustingly) lengthy and comprehensive exam and review of my records, immediately said I had PLS. Simply stated, these docs
know.
A comment on PLS research literature: I think the research that
has been done has been as valid and reliable as could be expected given that it's only included small sample populations. The bigger problem is that research on PLS is essentially non-existent.
That said, many "experts" (the academic/research types) are plain wrong -- one researcher recently said (it's out on video somewhere) that PLS "doesn't cause pain." I wrote her to let her know that, indeed, PLS
does cause pain -- most folks on
this forum would agree, I think. At least we've all discussed pain as a somewhat fundamental symptom of PLS. And
this is what causes this particular forum to be the very best place for understanding what "real" PLS/HSP'ers go through every day (and not what the medical research "book" people
think we go through). Here, it's all real.
Thinking aloud there, Rascal.....just thinking aloud....
Mike
