JTorm
Active member
- Joined
- Jun 7, 2013
- Messages
- 39
- Reason
- Learn about ALS
- Country
- PTY
- State
- Panama
- City
- Panama
Hi,
I joined this forum in the early days of june and I'm glad i did.
Despite on July 16th, being told "Suspected motor neurone disease" by a regular neuro (not an ALS specialist) my profile remains still, "i'm in the process of being diagnosed" as i have not had a definite answer yet.
I'm not going to talk about symptoms or such, but about coping with some things as I already know coping with losing normal body functions is Hell.. (If you want to comment on this, it's OK)
But i want to talk mainly about the family members pain. How as a PALS you cope with that feeling of, I wouldn't call it guilt, but it's somewhat similar.
This thing broke me today.
I was having a good week, despite all issues... I was calmed and relax, but while eating with my mom and she seeing me at how slowly i'm doing that lately, put her in a sad state... Then she was looking at my ankles noticing some difference.. and she went to her room.. I know she was crying and really concerned...
There is no single person in the world that i love more than my mother... and that event broke me today...
Yes, i'm not DEFINITE but I'm angry, frustrated and crying, because i cannot stand the fact that i'm the cause of my mother sadness...
She is a religious woman; I do too, but not as much as her and I'm starting thinking God abandoned us... and I know i shouldn't say that... but its plain HARD...
So, i don't know what to say, how to act. Would appreciate some advice...
Jon
I joined this forum in the early days of june and I'm glad i did.
Despite on July 16th, being told "Suspected motor neurone disease" by a regular neuro (not an ALS specialist) my profile remains still, "i'm in the process of being diagnosed" as i have not had a definite answer yet.
I'm not going to talk about symptoms or such, but about coping with some things as I already know coping with losing normal body functions is Hell.. (If you want to comment on this, it's OK)
But i want to talk mainly about the family members pain. How as a PALS you cope with that feeling of, I wouldn't call it guilt, but it's somewhat similar.
This thing broke me today.
I was having a good week, despite all issues... I was calmed and relax, but while eating with my mom and she seeing me at how slowly i'm doing that lately, put her in a sad state... Then she was looking at my ankles noticing some difference.. and she went to her room.. I know she was crying and really concerned...
There is no single person in the world that i love more than my mother... and that event broke me today...
Yes, i'm not DEFINITE but I'm angry, frustrated and crying, because i cannot stand the fact that i'm the cause of my mother sadness...
She is a religious woman; I do too, but not as much as her and I'm starting thinking God abandoned us... and I know i shouldn't say that... but its plain HARD...
So, i don't know what to say, how to act. Would appreciate some advice...
Jon