Old 07-12-2013, 11:17 AM #16 (permalink)
New Member
 
Join Date: 2013
City: Western
State: OR
Country: US
Diagnosed: 09/2010
Interest: I have ALS
Posts: 24
CaringWife is on a distinguished road
CaringWife CaringWife is offline
New Member
Join Date: 2013
City: Western
State: OR
Country: US
Diagnosed: 09/2010
Interest: I have ALS
Posts: 24
CaringWife is on a distinguished road
Default Re: Painful Back Spasms

Hi All,

I bought the therma wrap heat wraps last night, and it helped him a lot. We have to be careful of his back because he has radiation damage to the kidney area, and the skin where he was radiated is literally paper thin. We were able to place the wrap just below the burned area. He woke up this morning, and his back feels better.
As far as him getting a cane or a walker, I know this is going to have to be his call. We haven't told anybody yet about what is going on with him except our pastor. This will be the first real proof that something is wrong when he needs some kind of an aid to walk. He will fight this because that is just the nature of his personality. He has fought disability his whole life because of his childhood cancer. Back in 1960 when he had kidney cancer (Wilm's Tumor) at the age of three, they removed his left kidney at Children's Hospital in Boston and gave him cobalt radiation treatments at the Dana Farber Cancer Insititute. He went there weekly for three years for chemo and radiation. That is just the way it was back then, very primitive cobalt radiation. (60Gy) It saved his life, but left him horribly burned both front and back in the kidney area. His ribs never grew past age 3 on the left, and he developed severe scoliosis from the radiation as well. His arms and legs grew to normal proportions, but his torso is very short. He caves in a little more each year. He used to be taller than me, but is now about 3 inches shorter. In spite of this, he started his own construction company, and goes off to work each day working right alongside his crew. He is a man's man, and never complains about anything. Because he has always walked with a bit of a loping gait due to the scoliosis, I don't think people have realized what is happening to him, so nobody has mentioned that his legs seem weak, or that he is walking funny. To me it is so obvious because I study him, and know him so very well, plus I see the atrophy in his legs when he takes his pants off. Anyway, I think the back is going to be a real problem area for him as this progresses because he has problems there to begin with. Just a little ancient history on the love of my life.
Ellen
CaringWife is offline  
Old 08-09-2013, 04:05 PM #17 (permalink)
machaffi's Avatar
New Member
 
Join Date: 2012
City: Lutz
State: Florida
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 19
machaffi is on a distinguished road
machaffi machaffi is offline
New Member
machaffi's Avatar
Join Date: 2012
City: Lutz
State: Florida
Country: US
Diagnosed: 09/2012
Interest: I have been diagnosed with ALS.
Posts: 19
machaffi is on a distinguished road
Default Re: Painful Back Spasms

keeping that area warm is the answer, I found that a warm bath helps and keep that heating pad ready for when I get out of the bath.
machaffi is offline  
Closed Thread

Tags
back, cramping, denervation, emg, health, insurance, mnd, night, spasms, treatments


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Painful spasms relief rogeriopaguilar General Discussion About ALS/MND 3 08-14-2014 03:14 PM
Painful Question Gill'sgirl Current Caregivers (CALS) 14 08-27-2012 04:49 PM
My first painful fall Lavender Lady People With ALS - "PALS" 12 09-14-2010 12:12 PM
painful jaw LizT Tips, Tricks, and Gadgets 3 09-01-2010 09:27 PM
painful twitching with fibromyalgia Mike27 Chronic Pain 3 07-10-2010 02:06 PM
is als painful? Teg3 Current Caregivers (CALS) 20 05-13-2009 02:43 PM
Are EMGs painful jennibf Do I Have ALS? Is This ALS? 31 10-18-2008 09:23 PM
Are ALS fascics painful or at least very... Blizna Do I Have ALS? Is This ALS? 4 04-03-2008 02:48 AM
painful swallowing pldo Do I Have ALS? Is This ALS? 6 02-01-2008 01:56 PM
hands painful & cramping pls help TN1632 Do I Have ALS? Is This ALS? 3 08-12-2007 02:52 PM


All times are GMT -5. The time now is 11:48 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016