dbltree
Distinguished member
- Joined
- Jan 3, 2013
- Messages
- 217
- Reason
- PALS
- Diagnosis
- 01/2013
- Country
- US
- State
- Iowa
- City
- Birmingham
I hope no one is offended but this is one forum I wish I didn't need to join, but....here I am. After EMG, 2 MRI's, bloodwork, urine tests I was recently given the bad news that I have MND, most likely ALS.
I started loosing pinch, then grip strength in late Summer 2012 and slowly arm strength as well. Right ankle is weak but I can still walk but I trip easily when working in the timber where small stubs etc. cause me to end up on my face.
Only God knows how fast/slow this will progress but right now I can still do most activities although it appears that exercise is not a great idea? I have rampant muscle twitches that are worse on my right side then left right now.
I have quite a bit of muscle pain in my arm muscles especially if I use it at all and when sitting any pressure on the underside of my thigh from chair edge causes a great deal of soreness and discomfort. Any thoughts on muscle pain (since I commonly read there is no pain) would be welcome.
I also wonder if it is possible to get on disability at some point? Right now I would like to work as long as possible but that involves working in the timber and fields with farming activities so obviously that kind of work will soon be out of the question.
Thanks in advance for any thoughts or information that might help me as I go forward.
I started loosing pinch, then grip strength in late Summer 2012 and slowly arm strength as well. Right ankle is weak but I can still walk but I trip easily when working in the timber where small stubs etc. cause me to end up on my face.
Only God knows how fast/slow this will progress but right now I can still do most activities although it appears that exercise is not a great idea? I have rampant muscle twitches that are worse on my right side then left right now.
I have quite a bit of muscle pain in my arm muscles especially if I use it at all and when sitting any pressure on the underside of my thigh from chair edge causes a great deal of soreness and discomfort. Any thoughts on muscle pain (since I commonly read there is no pain) would be welcome.
I also wonder if it is possible to get on disability at some point? Right now I would like to work as long as possible but that involves working in the timber and fields with farming activities so obviously that kind of work will soon be out of the question.
Thanks in advance for any thoughts or information that might help me as I go forward.