ddpreds
New member
- Joined
- Feb 13, 2008
- Messages
- 5
- Reason
- CALS
- Diagnosis
- 09/2006
- Country
- US
- State
- TN
- City
- Nashville
For quite a while I have been "lurking" here, reading things people post so I could try and understand what my Mom was going through.
She first starting coughing a lot in 2005. Diagnosed with the "possibility" of ALS in 2006. And officially diagnosed in early 2007.
Her speech was the first thing to go. I haven't heard her voice in two and a half years.
She did really well for a while. An occasional fall. Luckily never hurting herself.
Things started going down hill fast the middle of April. She was addmitted into the hospital with bronchitis, and an infection. That seemed to really speed things up.
I lived at home with her to take care of her and work too, but I finally had to break down and ask for help.
My sister was of no help, so I had to go to one of my aunts.
Hospice was coming at this point, but only the nurse for two or three times a week.
The end of May, I more less started staying at home to help her and be there.
Sunday, May 31, I had a bad feeling. I stayed up all night just to watch over her. At 3AM, I saw her move so I knew she was awake. I went into the living room where her hospital bed was set up and ask her if she was okay.
I knew I needed to say things then. I told her I loved her and she patted me on the back. I knew she was worrying about me being there by myself, so I told her not to worry, I would be fine.
(Glad this is not paper 'cause I can't hold the tears.)
Monday was a very bad day. She was so aggitated the morphine and ativan were doing nothing.
I called the hospice nurse and we got 24 hour nurse care starting that night.
Tuesday, she was somewhat responsive the first half of the day, but then, nothing. Wednesday morning, after I talked to her and told her she could let go and go to a better place, she never woke up again.
I still can't sleep through the night, thinking I will hear the wireless door bell I bought for her to let me know she needs me.
I miss her something terrible, but I know she is in a much better place, with my dad, not having to worry about PEG tubs, morphine, ativan, hospice nurses or me.
Thank you all for your information, your kind hearts toward other people and my God bless all of you and help you through each and every day.
The ALS Walk is being held here in Nashville, Saturday, September 19th and I am walking in her honor.
She first starting coughing a lot in 2005. Diagnosed with the "possibility" of ALS in 2006. And officially diagnosed in early 2007.
Her speech was the first thing to go. I haven't heard her voice in two and a half years.
She did really well for a while. An occasional fall. Luckily never hurting herself.
Things started going down hill fast the middle of April. She was addmitted into the hospital with bronchitis, and an infection. That seemed to really speed things up.
I lived at home with her to take care of her and work too, but I finally had to break down and ask for help.
My sister was of no help, so I had to go to one of my aunts.
Hospice was coming at this point, but only the nurse for two or three times a week.
The end of May, I more less started staying at home to help her and be there.
Sunday, May 31, I had a bad feeling. I stayed up all night just to watch over her. At 3AM, I saw her move so I knew she was awake. I went into the living room where her hospital bed was set up and ask her if she was okay.
I knew I needed to say things then. I told her I loved her and she patted me on the back. I knew she was worrying about me being there by myself, so I told her not to worry, I would be fine.
(Glad this is not paper 'cause I can't hold the tears.)
Monday was a very bad day. She was so aggitated the morphine and ativan were doing nothing.
I called the hospice nurse and we got 24 hour nurse care starting that night.
Tuesday, she was somewhat responsive the first half of the day, but then, nothing. Wednesday morning, after I talked to her and told her she could let go and go to a better place, she never woke up again.
I still can't sleep through the night, thinking I will hear the wireless door bell I bought for her to let me know she needs me.
I miss her something terrible, but I know she is in a much better place, with my dad, not having to worry about PEG tubs, morphine, ativan, hospice nurses or me.
Thank you all for your information, your kind hearts toward other people and my God bless all of you and help you through each and every day.
The ALS Walk is being held here in Nashville, Saturday, September 19th and I am walking in her honor.