Old 12-04-2017, 08:27 PM #1 (permalink)
finiteguy's Avatar
New Member
 
Join Date: 2017
City: Wakefield
State: MA
Country: US
Interest: Other
Posts: 11
finiteguy is on a distinguished road
finiteguy finiteguy is offline
New Member
finiteguy's Avatar
Join Date: 2017
City: Wakefield
State: MA
Country: US
Interest: Other
Posts: 11
finiteguy is on a distinguished road
Default My wife died of ALS last Monday, Nov 27,2017

This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have pain. My wife, Susan, had and EMG 2 years ago the results showed " diffuse disorder of anterior horn cell" ...which means MND and ALS. Susan was at MGH for 3 weeks to find out if they could manage her pain...and they could not...even with morphine. She came home form MGH on Sat Nov 26, in very bad shape. They spent way to much time with MRI's and other tests at MGH and I should have put my foot down and insisted that she come home earlier. Susan came home from MGH on the 26th and Sunday morning the 27th I could not wake her....she was breathing but apparently in a coma...eyes slightly opened. I sent her back to the hospital because I wasn't sure what was going on...and she passed away the next day. I was with her when God took her. Her funeral was Dec1, and our 39th wedding anniversary would have been Dec 2. I also have found out that her mother and sister had this disease. Anyway, I can't talk or think about this anymore. I will never get over this. ALS is the cruelest thing that I have ever witnessed.
finiteguy is offline   Reply With QuoteReply With Quote
Old 12-04-2017, 08:33 PM #2 (permalink)
Lkaibel's Avatar
Senior Member
 
Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 06/2016
Interest: I am a caregiver for someone with ALS/MND.
Posts: 758
Lkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to all
Lkaibel Lkaibel is offline
Senior Member

Lkaibel's Avatar
Join Date: 2016
City: Minneapolis
State: MN
Country: US
Diagnosed: 06/2016
Interest: I am a caregiver for someone with ALS/MND.
Posts: 758
Lkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to allLkaibel is a name known to all
Default Re: My wife died of ALS last Monday, Nov 27,2017

If you do happen to read this, I just wanted to say that I hope you can one day find some peace and comfort in memories of better times with your wife.
Lkaibel is offline   Reply With QuoteReply With Quote
Old 12-04-2017, 09:17 PM #3 (permalink)
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,037
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
KimT KimT is offline
Extremely Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,037
KimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud ofKimT has much to be proud of
Default Re: My wife died of ALS last Monday, Nov 27,2017

I'm so very sorry.
KimT is offline   Reply With QuoteReply With Quote
Old 12-04-2017, 09:40 PM #4 (permalink)
ShiftKicker's Avatar
Moderator
Forum Moderator
 
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,137
ShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud of
♥ ShiftKicker ShiftKicker is offline
Moderator
Forum Moderator

ShiftKicker's Avatar
Join Date: 2015
City: Vancouver
State: BC
Country: CA
Diagnosed: 06/2015
Interest: I have been diagnosed with UMND/PLS.
Posts: 1,137
ShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud ofShiftKicker has much to be proud of
Default Re: My wife died of ALS last Monday, Nov 27,2017

I am so sorry to hear of your loss. You and your wife had a difficult time these past years, and I regret all the pain you went through to try to find help. You are a dedicated and loving partner- it came through loud and clear that you were fighting for the best care for your wife. I wish you peace and freedom from sorrow.
ShiftKicker is offline   Reply With QuoteReply With Quote
Old 12-04-2017, 11:04 PM #5 (permalink)
Senior Member
 
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 972
Narrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to behold
Narrowminded Narrowminded is online now
Senior Member
Join Date: 2016
City: Pittsburgh
State: PA
Country: US
Diagnosed: 07/2007
Interest: I am a caregiver for someone with ALS/MND.
Posts: 972
Narrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to beholdNarrowminded is a splendid one to behold
Default Re: My wife died of ALS last Monday, Nov 27,2017

I am so sorry for your loss
Narrowminded is online now   Reply With QuoteReply With Quote
Old 12-04-2017, 11:11 PM #6 (permalink)
Lscott71's Avatar
New Member
 
Join Date: 2017
City: Fort Worth
State: Texas
Country: US
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 25
Lscott71 is on a distinguished road
Lscott71 Lscott71 is online now
New Member
Lscott71's Avatar
Join Date: 2017
City: Fort Worth
State: Texas
Country: US
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 25
Lscott71 is on a distinguished road
Default Re: My wife died of ALS last Monday, Nov 27,2017

Iím so very sorry!
Lscott71 is online now   Reply With QuoteReply With Quote
Old 12-05-2017, 12:21 AM #7 (permalink)
KarenNWendyn's Avatar
Member
 
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 211
KarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura about
KarenNWendyn KarenNWendyn is offline
Member

KarenNWendyn's Avatar
Join Date: 2017
City: Talent
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 211
KarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura aboutKarenNWendyn has a spectacular aura about
Default Re: My wife died of ALS last Monday, Nov 27,2017

Wishing you comfort.
KarenNWendyn is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 01:19 AM #8 (permalink)
Very Helpful Member
 
Join Date: 2007
City: Anywhere
State: Western Canada
Country: Can
Interest: Other
Posts: 1,431
laurel is on a very distinguished roadlaurel is on a very distinguished road
laurel laurel is offline
Very Helpful Member
Join Date: 2007
City: Anywhere
State: Western Canada
Country: Can
Interest: Other
Posts: 1,431
laurel is on a very distinguished roadlaurel is on a very distinguished road
Default Re: My wife died of ALS last Monday, Nov 27,2017

finiteguy, your words were hard to read and heartbreaking. I am so sorry. I wish you peace and healing in the weeks to come.

Laurel
laurel is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 01:39 AM #9 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 4,925
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 4,925
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: My wife died of ALS last Monday, Nov 27,2017

I'm very sorry for your loss of Susan and your discovery of the losses in her family. It is a cruel disease indeed. Much peace and strength to you.

Best,
Laurie
lgelb is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 11:45 AM #10 (permalink)
worrieddaughter77's Avatar
New Member
 
Join Date: 2017
City: S
State: IL
Country: USA
Diagnosed: 10/2017
Interest: I am a family member of someone with ALS/MND.
Posts: 82
worrieddaughter77 is on a distinguished road
worrieddaughter77 worrieddaughter77 is offline
New Member
worrieddaughter77's Avatar
Join Date: 2017
City: S
State: IL
Country: USA
Diagnosed: 10/2017
Interest: I am a family member of someone with ALS/MND.
Posts: 82
worrieddaughter77 is on a distinguished road
Default Re: My wife died of ALS last Monday, Nov 27,2017

I am very sorry to hear about your loss...
worrieddaughter77 is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 12:21 PM #11 (permalink)
Angiegal's Avatar
Member
 
Join Date: 2017
City: Kitchener
State: Ontario
Country: Can
Diagnosed: 09/2015
Interest: I have been diagnosed with ALS.
Posts: 190
Angiegal has a spectacular aura aboutAngiegal has a spectacular aura about
Angiegal Angiegal is offline
Member
Angiegal's Avatar
Join Date: 2017
City: Kitchener
State: Ontario
Country: Can
Diagnosed: 09/2015
Interest: I have been diagnosed with ALS.
Posts: 190
Angiegal has a spectacular aura aboutAngiegal has a spectacular aura about
Default Re: My wife died of ALS last Monday, Nov 27,2017

My deepest condolences to you. Hoping you find peace.

Angie
Angiegal is offline   Reply With QuoteReply With Quote
Old 12-05-2017, 12:36 PM #12 (permalink)
New Member
 
Join Date: 2016
City: katy
State: texas
Country: US
Diagnosed: 02/2016
Interest: I lost a loved one to ALS/MND.
Posts: 94
adrivtham is on a very distinguished road
adrivtham adrivtham is offline
New Member
Join Date: 2016
City: katy
State: texas
Country: US
Diagnosed: 02/2016
Interest: I lost a loved one to ALS/MND.
Posts: 94
adrivtham is on a very distinguished road
Default Re: My wife died of ALS last Monday, Nov 27,2017

I am so sorry, no words just a big hug in this sad time.
Adriana
adrivtham is offline   Reply With QuoteReply With Quote
Old 12-07-2017, 02:14 AM #13 (permalink)
Arlee's Avatar
New Member
 
Join Date: 2017
City: L.C
State: USA
Country: US
Diagnosed: 11/2016
Interest: I have been diagnosed with ALS.
Posts: 24
Arlee is on a distinguished road
Arlee Arlee is offline
New Member
Arlee's Avatar
Join Date: 2017
City: L.C
State: USA
Country: US
Diagnosed: 11/2016
Interest: I have been diagnosed with ALS.
Posts: 24
Arlee is on a distinguished road
Default Re: My wife died of ALS last Monday, Nov 27,2017

Hello F' I am truly sorry about Susan. She is in Gods arms now. You are right about the pain. My Dr was not a believer that pain was a big part of our lives...He is now. My pain Doc has said about 20- 25% of us suffer horribly with pain for those who don't suffer don't get it...You know if a tree falls in the woods yadi yadi yadi. Bless you...

A
Arlee is offline   Reply With QuoteReply With Quote
Reply

Tags
age, als, back, breathing, cell, denial, emg, mnd, morphine, mri, pain, tests, wrong


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
My wife starts NP001 on Monday, 5/1/17 NothingButLove ALS Drug Trials 10 05-08-2017 11:31 PM
emg monday Brittanywillis Do I Have ALS? Is This ALS? 18 10-21-2015 09:58 AM
We go monday .... Mandyintn123 General Discussion About PEG's 6 04-23-2015 09:49 AM
My Wife Adele died yesterday theseus In Memoriam/In Memory of 28 12-27-2010 03:03 PM
Peg on Monday Blackpool General Discussion About ALS/MND 39 10-22-2009 01:16 PM


All times are GMT -5. The time now is 05:28 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016