Manhattanite
Distinguished member
- Joined
- May 10, 2015
- Messages
- 209
- Reason
- Lost a loved one
- Diagnosis
- 05/2015
- Country
- US
- State
- NY
- City
- New York
My husband passed away early this morning. He went to the bathroom in the middle of the night and fell. The disease had advanced to a point where it was difficult for him to breathe without the ventilator. Unable to get up and to breathe, he passed away. I hadn't heard anything and found him on the bathroom floor when I woke up. I am beyond heartbroken. I knew the end was approaching but I thought I still had one more season to share with him.
The same stubbornness brought on by FTD made him refuse the bedside commode we had provided for him. I guess this was meant to happen sooner than later.
I am proud of the care I took of him, of all the research I did, of the decisions I made. I don't regret a single thing. Yesterday at work I thought to myself, "What will I think of all of this in 10 years? What would my future self tell me right now?" I wrote down: "Shower him with love, tell him how much you love him, and you will never regret it." So last night after I put him to bed I hugged him, I kissed him on the nape of the neck and on his head, and I said how much I loved him. So grateful that I did this because it was a beautiful goodbye. Remember this with your PALS: you never know when the end can come.
Thank you to everyone for your posts and for the information. What I learned about hospice here made our lives infinitely better. This is a horrible disease that has stolen my future and my love. I will never be the same but I am also a more compassionate person.
Godspeed my husband. I will love you for eternity.
The same stubbornness brought on by FTD made him refuse the bedside commode we had provided for him. I guess this was meant to happen sooner than later.
I am proud of the care I took of him, of all the research I did, of the decisions I made. I don't regret a single thing. Yesterday at work I thought to myself, "What will I think of all of this in 10 years? What would my future self tell me right now?" I wrote down: "Shower him with love, tell him how much you love him, and you will never regret it." So last night after I put him to bed I hugged him, I kissed him on the nape of the neck and on his head, and I said how much I loved him. So grateful that I did this because it was a beautiful goodbye. Remember this with your PALS: you never know when the end can come.
Thank you to everyone for your posts and for the information. What I learned about hospice here made our lives infinitely better. This is a horrible disease that has stolen my future and my love. I will never be the same but I am also a more compassionate person.
Godspeed my husband. I will love you for eternity.