vzandt
Senior member
- Joined
- Nov 12, 2011
- Messages
- 582
- Reason
- Lost a loved one
- Diagnosis
- 04/2010
- Country
- US
- State
- N.H.
- City
- Noneknown
For five years we worried about ALS. About how it would end. My husband of thirty nine years passed on Thursday the 16. I never posted a lot because his was so slow...even the newbies seemed worse than he was. He used a bipap at night. A walker to walk. He was just beginning to have voice changes. Still ate and drank what he wanted. Had terrible spasms....
What pisses me off is that for five years he was scared of end stage ALS and he didn't have to be. He was walking down the hall to go to bed..coughed..and never got his breath back. Gone in minutes. No matter what the doctors say...no matter what we know..we still don't know when or how we will go. My husband has been my life for 39 years. How do you live with someone for 39 years...and than not. My sons are so heartbroken...I am so heartbroken...and I am so glad he didn't have to go through the worst of it. I'm just pissed he had to worry about it.
I want the pals and Cals to know how important this forum was to us. How I i met some very important people on here..who I will never meet...who will always be an important part of my life. I want you to all know how much you help...even in your rants...your jokes...your tips.
I want you Pals to know that you are very much loved.
What pisses me off is that for five years he was scared of end stage ALS and he didn't have to be. He was walking down the hall to go to bed..coughed..and never got his breath back. Gone in minutes. No matter what the doctors say...no matter what we know..we still don't know when or how we will go. My husband has been my life for 39 years. How do you live with someone for 39 years...and than not. My sons are so heartbroken...I am so heartbroken...and I am so glad he didn't have to go through the worst of it. I'm just pissed he had to worry about it.
I want the pals and Cals to know how important this forum was to us. How I i met some very important people on here..who I will never meet...who will always be an important part of my life. I want you to all know how much you help...even in your rants...your jokes...your tips.
I want you Pals to know that you are very much loved.