scotslassie
Distinguished member
- Joined
- Mar 7, 2012
- Messages
- 178
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- EU
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Hello everybody. I tried introducing myself a wee while ago but I must have pressed the wrong button (not very great at this). I wish I had found this forum months ago. I would have found lots of answers to my questions here. Sadly, my lovely aunt has recently passed away. She was diagnosed in May 2011. As there were not that many years between us she was more like a sister to me. We expected to be told that she had Myotonic Dystrophy as this is in our family so her diagnosis came as a bolt from the blue. We are not strangers to this cruel disease although my aunt was the first blood relative. It has come into our presence in the past and just a few weeks ago it raised its ugly head again when a neighbour was diagnosed with Bulbar Onset. A lovely lady aged just 40.
We are raising funds by having sponsored bungee jumps, bicycle runs and a fund raising night. I hope it's ok if I stay here on this forum to gather information and advice. I've read a lot of posts and you all seem like a great bunch of people. Thanks x
We are raising funds by having sponsored bungee jumps, bicycle runs and a fund raising night. I hope it's ok if I stay here on this forum to gather information and advice. I've read a lot of posts and you all seem like a great bunch of people. Thanks x