Hi Ya'll,
I know I was never really active in this forum but I did really use it to read about questions I had throughout my mom's disease for the past 2.5 years.
Kim Pham (my mother) was diagnosed May 2009 with Bulbar Onset ALS. However, she's had the symptoms for a year, but was misdiagnosed as acid reflux (and had a very necessary and stressful surgery as a result). A year and a half later, on January 29, 2011, she passed away.
Actually, we thought she was going to pass away that Thursday, but she waited for my brother to drive in from 3 hours away. Then she lived on for another 2 days before she passed. My father, myself, and my brother watched as she took her last breaths.
This disease is so horrible. She was a good woman, dedicated to God. She was always active in church prior to her disease and she always donated to the church and to the poor. In so many ways, she did not deserve this. The past 2.5 years have been so hard on her and had not been fair.
But at least, she is no longer suffering. At least she may now rest in peace.
Thank you all for your help through this board.
Kim
I know I was never really active in this forum but I did really use it to read about questions I had throughout my mom's disease for the past 2.5 years.
Kim Pham (my mother) was diagnosed May 2009 with Bulbar Onset ALS. However, she's had the symptoms for a year, but was misdiagnosed as acid reflux (and had a very necessary and stressful surgery as a result). A year and a half later, on January 29, 2011, she passed away.
Actually, we thought she was going to pass away that Thursday, but she waited for my brother to drive in from 3 hours away. Then she lived on for another 2 days before she passed. My father, myself, and my brother watched as she took her last breaths.
This disease is so horrible. She was a good woman, dedicated to God. She was always active in church prior to her disease and she always donated to the church and to the poor. In so many ways, she did not deserve this. The past 2.5 years have been so hard on her and had not been fair.
But at least, she is no longer suffering. At least she may now rest in peace.
Thank you all for your help through this board.
Kim