daughter01
Member
- Joined
- Oct 31, 2009
- Messages
- 17
- Reason
- Loved one DX
- Country
- US
- State
- PA
- City
- Harrisburg
I have only been on this site for about a month. My mother was diagnosed 3 weeks ago after a 14 month search for what her diagnosis was. This monster took her life, but we know that she was looking for ward to heaven and being with Jesus. We had prayed that the end would be kind and it was. She was not in any pain. She was 76 years old.
We are thankful she went quietly into the night laying in bed next to her husband. He has taken care of her 24 hours a day, 7 days a week for the last couple months. I think that he has shown what real love and devotion looks like. He cared for her. He loved her. He kept her dignity.
Now we are happy she is free of this monster ALS but so sad for the loving mother and friend. She showed me so many things in life. How to love and be loved. How to be courageous and compassionate and caring. Up until the end when she could raise an eyebrow or smile (it literally lit up a room) she was encouraging my daughter and praising her. What a blessing to know and have a mother like this.
To all you PALS, my heart and prayers go out to you on this difficult journey. My Aunt died of ALS so I don't know if I will be on this journey some day or not. To you CALS, hang in there. The love and care you give will be a wonderful lesson to your children and the people that are around you and a gift that has so much value to the person you care for. My heart is broken but it is full. Full of memories of a great childhood and full of love for my Mom's husband and full of hope for the friends and family that surround us.
I kept a journal on caringbridge.org/jackie herr. I recommend you set one up to keep the loved ones in your lives when it is too hard to do it yourself. Thank you all for being here. You have meant a lot to me. I hope to be able to give back when my heart is healed.
We are thankful she went quietly into the night laying in bed next to her husband. He has taken care of her 24 hours a day, 7 days a week for the last couple months. I think that he has shown what real love and devotion looks like. He cared for her. He loved her. He kept her dignity.
Now we are happy she is free of this monster ALS but so sad for the loving mother and friend. She showed me so many things in life. How to love and be loved. How to be courageous and compassionate and caring. Up until the end when she could raise an eyebrow or smile (it literally lit up a room) she was encouraging my daughter and praising her. What a blessing to know and have a mother like this.
To all you PALS, my heart and prayers go out to you on this difficult journey. My Aunt died of ALS so I don't know if I will be on this journey some day or not. To you CALS, hang in there. The love and care you give will be a wonderful lesson to your children and the people that are around you and a gift that has so much value to the person you care for. My heart is broken but it is full. Full of memories of a great childhood and full of love for my Mom's husband and full of hope for the friends and family that surround us.
I kept a journal on caringbridge.org/jackie herr. I recommend you set one up to keep the loved ones in your lives when it is too hard to do it yourself. Thank you all for being here. You have meant a lot to me. I hope to be able to give back when my heart is healed.