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Zaphoon Zaphoon is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 340
  1. Trippy
    10-03-2014 08:09 PM - permalink
    Hello Zaphoon,

    I'm new to the forum and have been reviewing past posts over the years. I especially enjoyed all of yours! Haven't seen any recent activity of yours though. Hope you are doing well. Kathy
  2. pearshoot
    02-11-2014 03:04 PM - permalink
    still hanging on...walk, talk, eat, breath... use PWC but can transfer to and from walker by myself...still believing Eastern Medicine about you...second Tuesday next month, same time and place
  3. jaylay80
    01-10-2014 12:39 PM - permalink
    Hi zaphoon,
    I am interested to find out about the cramps you were experiencing..
    I have been in a world of hell for the last 4 months with extreme health anxiety and just haven't been able to convince myself that my symptons are all anxiety related.
    I have been getting muscle cramps in my legs and torso when I'm at rest it feels like a short dull pain asl part of the muscle cramps. and my right calf muscle seems to be pulling all the time and cramping is this something similar to what you experienced?
  4. olly
    07-12-2013 08:05 AM - permalink
    Hi kim,good to see you posting.
    How are you doing? Any news on the neuropathy or dx?
    Miss your humour around here.
    Take good care,caroline.
  5. vickim
    06-11-2013 10:33 PM - permalink
    I loved your video on the sandbox. Here4her, Nighthawk and I thought we were all alone. thank you. It made me smile.
  6. JTorm
    06-07-2013 07:10 PM - permalink
    Hello Zaphoon... Im new to the forum and i'm seeking some helpful members i can meet in here like you ;) nice to meet you.. I'm Juan From Panama... (i'm latino)
  7. pearshoot
    05-15-2013 10:26 PM - permalink
    no als meeting this month hope to see you next month second tuesday wheeler heart center
  8. olly
    04-30-2013 04:20 PM - permalink
    HEEEYYY Kim,how you doing? Long time no see lol.
    So good to see you on the forum,i have missed you and your wacky humour lol.
    Keep in touch.......and please come on the forum more ofton.
  9. vaibhav
    02-19-2013 03:20 AM - permalink
    Hi zaph,

    So what disease do you have?? I have been twitching for last 4 months and have clean emg's and neuro exams, wright says that since my EMG's and neuro exams. are clean I should not be worried. Would you concurr with wrights view.
  10. DBowman
    02-11-2013 02:43 AM - permalink
    Hey, Zaph.....How ya been? I dropped off the site for a long breaks my heart to witness new, and frightened people that are just arriving to the site and I couldn't bear it for a while....but all they have to do is get a kind and witty word from you and you immediately put their mind at've always had that gift....

About Me

  • About Zaphoon
    What's your relationship with ALS/MND?
    I have been diagnosed with UMND/PLS.
    If diagnosed, when was the diagnosis?
    State or Province
    54, Male, Married, Wyatt's grampa, Ret. Navy cryptologist
    Retired U.S. Navy
    Playing trombone & cello, Working on secret projects at PZ Laboratories, Inc.
  • Signature
    Each time I find myself flat on my face
    I pick myself up and get back in the race!


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General Information
  • Last Activity: 02-21-2014 05:03 PM
  • Join Date: 08-02-2008


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