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WendyWooG WendyWooG is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 12
  1. mich5
    03-12-2018 04:42 PM - permalink
    wendy, saw Jims calf massage thread. Would you send me the link for the booties foot massage you got. I would love to get something that I know works for someone rather than trying something new and it not working for me. Thank you!
  2. Angiegal
    02-04-2018 07:55 AM - permalink
    Hi Wendy
    Haven't seen anything from you in awhile. Doing ok?

  3. aluk
    09-01-2017 05:08 PM - permalink
    Thank you so much for your time in answering, very much appreciated. i will try and get a copy,
    Kind Regards
  4. aluk
    09-01-2017 03:57 PM - permalink
    Hi Wendy, am twitching big time, GP delay in EMG, i have done private emg, he states occassional polyphasic unit in calfs and right bicep, almost all muscles tested had mildly reduced interference pattern also chronic denervation left tricep, am worried and not sure, any ideas of what occasional polyphasic means? or what steps should i take, mainly twitching also toe weakness, i feel a bit uncordinated when walking but stress is a big factor. Thanks
  5. JacobF
    06-05-2017 02:27 PM - permalink

    I am a long time lurker on this site. Can you give me your opinion on my symptoms? 32 yo w male.

    Symptoms- body wide twitching for 1.5 years, legs and arms feel weak with daily activities and get stiff. Get a deep ache and burn in legs especially. I have exercise intolerance due to burning and fatigue. Feel better with rest, but never completely goes away.

    Went to gp a year ago and no weakness, normal reflexes, neg babinski, neg Hoffman. I can run, jump and do everything I want, but I feel the perceived weakness and get the burning. I also suffer from anxiety.

  6. phaetonv8
    05-15-2017 09:30 AM - permalink
    Thanks Wendy for your quick reply l appreciate it very much, I know it sounds daft but stupidly even after all the advice and reassurance from yourselves and the experts, it just takes me back knowing about the symptoms of this dreadful illness, as I said I only had a EMG 8 weeks ago and it was normal, even with my little grasp of knowledge, surely anything that wasn't right would have been detected, I mean one can't go from clean to experiencing cramps, fasciculations and so called numbness in that short time.

  7. phaetonv8
    05-15-2017 07:17 AM - permalink
    Afternoon Wendy,
    I know you have said a few times before about the fact that a EMG can pick up issues long before any symptoms, at my EMG l was diagnosed as having BFS that was 8 weeks ago and it was normal. I have tried to get a response in saying that if I am currently getting fasciculations, pain and numbness in my left arm and shoulders, would this have been picked up at the EMG? I feel very stupid and anxious that I am again thinking about this, I had a brief conversation with the Neurologist and he put the phone down in dusgust in me thinking about this. Surely anything that Im feeling now would have come up on test?

  8. Jay654
    03-24-2017 06:51 AM - permalink
    Hi Wendy,

    I had a look at your story and just want to say thanks for the helpful replies. It can't be easy juggling MND and posting to others on a forum I really appreciate it and wish you all the best.

  9. azgirl
    11-18-2016 06:29 PM - permalink
    Thanks Wendy, I will check it out.
  10. affected
    05-26-2016 05:31 PM - permalink
    thanks Wendy, I had sent him a pm and usually he would respond, so passing on my thoughts to him is much appreciated xx

About Me

  • About WendyWooG
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    Married two daughters and one gorgeous granddaughter
    I was an urban traffic control engineer
    Needlework, reading, music


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  • Last Activity: 09-14-2018 09:03 AM
  • Join Date: 01-10-2016


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