WendyWooG's Profile Picture
WendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really niceWendyWooG is just really nice

WendyWooG WendyWooG is online now

Member

Visitor Messages

Showing Visitor Messages 1 to 10 of 10
  1. aluk
    09-01-2017 05:08 PM - permalink
    aluk
    Thank you so much for your time in answering, very much appreciated. i will try and get a copy,
    Kind Regards
  2. aluk
    09-01-2017 03:57 PM - permalink
    aluk
    Hi Wendy, am twitching big time, GP delay in EMG, i have done private emg, he states occassional polyphasic unit in calfs and right bicep, almost all muscles tested had mildly reduced interference pattern also chronic denervation left tricep, am worried and not sure, any ideas of what occasional polyphasic means? or what steps should i take, mainly twitching also toe weakness, i feel a bit uncordinated when walking but stress is a big factor. Thanks
  3. JacobF
    06-05-2017 02:27 PM - permalink
    JacobF
    Wendy,

    I am a long time lurker on this site. Can you give me your opinion on my symptoms? 32 yo w male.

    Symptoms- body wide twitching for 1.5 years, legs and arms feel weak with daily activities and get stiff. Get a deep ache and burn in legs especially. I have exercise intolerance due to burning and fatigue. Feel better with rest, but never completely goes away.

    Went to gp a year ago and no weakness, normal reflexes, neg babinski, neg Hoffman. I can run, jump and do everything I want, but I feel the perceived weakness and get the burning. I also suffer from anxiety.

    Thanks
  4. phaetonv8
    05-15-2017 09:30 AM - permalink
    phaetonv8
    Thanks Wendy for your quick reply l appreciate it very much, I know it sounds daft but stupidly even after all the advice and reassurance from yourselves and the experts, it just takes me back knowing about the symptoms of this dreadful illness, as I said I only had a EMG 8 weeks ago and it was normal, even with my little grasp of knowledge, surely anything that wasn't right would have been detected, I mean one can't go from clean to experiencing cramps, fasciculations and so called numbness in that short time.

    Mark
  5. phaetonv8
    05-15-2017 07:17 AM - permalink
    phaetonv8
    Afternoon Wendy,
    I know you have said a few times before about the fact that a EMG can pick up issues long before any symptoms, at my EMG l was diagnosed as having BFS that was 8 weeks ago and it was normal. I have tried to get a response in saying that if I am currently getting fasciculations, pain and numbness in my left arm and shoulders, would this have been picked up at the EMG? I feel very stupid and anxious that I am again thinking about this, I had a brief conversation with the Neurologist and he put the phone down in dusgust in me thinking about this. Surely anything that Im feeling now would have come up on test?

    Mark
  6. Jay654
    03-24-2017 06:51 AM - permalink
    Jay654
    Hi Wendy,

    I had a look at your story and just want to say thanks for the helpful replies. It can't be easy juggling MND and posting to others on a forum I really appreciate it and wish you all the best.

    Jay
  7. azgirl
    11-18-2016 06:29 PM - permalink
    azgirl
    Thanks Wendy, I will check it out.
  8. affected
    05-26-2016 05:31 PM - permalink
    affected
    thanks Wendy, I had sent him a pm and usually he would respond, so passing on my thoughts to him is much appreciated xx
  9. WendyWooG
    05-26-2016 05:55 AM - permalink
    WendyWooG
    Hi
    No we haven't I have been getting a bit worried myself, I will send him a pm today. He does usually respond to those quite quickly. I have also dropped a quick message to Mnda connect over here for assistance in making sure he is ok.
    Wendy x
  10. affected
    05-25-2016 03:21 PM - permalink
    affected
    hey Wendy do you know if anyone on the UK forum has had any contact with Dave and if he is ok?

About Me

  • About WendyWooG
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    07/2016
    City
    Stevenage
    State or Province
    Hertfordshire
    Country
    Uk
    Biography
    Married two daughters and one gorgeous granddaughter
    Occupation
    I was an urban traffic control engineer
    Interests
    Needlework, reading, music

Statistics

Total Posts
Albums
Visitor Messages
Total Thanks
General Information

Friends

Showing Friends 1 to 2 of 2

All times are GMT -5. The time now is 07:00 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016