vickim is on a very distinguished road

vickim vickim is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 280
  1. monster
    09-12-2018 04:18 PM - permalink
    Hi Vicki.
    I tried to send you a PM but it seems you don’t have capabilities for me to do so. I am going through testing for mitochondrial and wondering if we can chat?
  2. Ben1985
    12-02-2017 01:51 AM - permalink
    I’m not good at all. Still hanging in but it’s very very hard. I’ll try to write more at some point soon. Hoping you are hanging in there also Vicki!
  3. Ben1985
    12-01-2017 02:35 PM - permalink
    Hi Iím never on here but I hope your Thanksgiving was good and you are doing well also !!!
  4. Ben1985
    12-01-2017 02:34 PM - permalink
    Hi! I’m never on here at all but hope things are going well for you also !!
  5. corwin
    04-08-2017 03:52 AM - permalink
    Thank you for the answer...
    Unfortunatelly in my country there are no test for mito disease...... The doctor are telling me averytime- no als but obvious atrophy in bot hands and tongue. The whole process is symetrical and painfull which is like systemic disease...
    I will go to germany in June for more tests and i really hope for curable solution....
    The most strange thing is the muscle are shaking when stretching like whole body clonus and there movement is not smooth..... like brain signal interuption...
    Thank you agan!
  6. corwin
    03-23-2017 06:31 PM - permalink
    Hi Vicky:)
    Greetings from another part of the world.
    Can i ask you something - I have some kind of muscular disorder. My doctors cannot find what it is. I live in small country and there not so many cases of this - in general I have generalised muscle atrophy with blurry vision, swallowing dif., tongue atrophy and hypperrefleia.
    The docs are stumbled because for 2 years my Emg were clear, so they say no als but I have obvious atrophy.
    Can I ask you about you supplement regime ??
    Thank you very much
  7. edwards5257
    02-25-2016 12:40 PM - permalink
    Sorry for delays, I don't get into my stand alone computer alot and this is my account here. I can't remember my password and have tried over and over and over to get it to work. I had to come up with a NEW I.D. (a no no I know) and cannot do pms at all, if ever again. I appreciate your concern. Nothing is better, if anything it is much much worse. I may try to do a pm here for you if o.k. at some point soon. I go back to St. Louis 04 07. Hoping things are fairly well for you.
  8. skipper66
    11-02-2015 08:08 PM - permalink
    Hi Vicki,
    Sorry to read that your health issues are flaring up again. Also, I hate to hear about your dad. I will be praying for you and your family. When things calm down for you if you are on facebook you can always add me. There are to Kim Deters. But, I'm listed as Kim Stephens Deters. Hugs, Kim
  9. skipper66
    10-31-2015 05:34 PM - permalink
    Hi Vicki,
    Is the pub thread open anymore. Probally, alot of the members aren't able to post anymore. How are you? I'm doing well. Getting ready to move into my dad's home. I wish he could live there instead of me. But, I am excited about getting out of my apartment. More room for the kids and a nicer neighborhood.
    We had a great visit with my dad over the Columbus day weekend. He's hanging in there but has hardly any use of his arms, hands, or legs. Take care, Kim
  10. skipper66
    09-13-2015 10:28 PM - permalink
    Hi Vicki,
    How have you been? My dad turned 81 this past Friday. My husband (or whatever) is taking the kids and I to see dad over Columbus weekend. The kids have four days off because they have a teacher's institute. It's so hard for the twins to go during the school year because they get so far behind. I'm going to try to go every few months if I can afford it. I haven't been on here as much. I have been spending alot of time on line on a support group for separated and divorced people. It helps to talk to others who understand. Take care, Kim

About Me

  • About vickim
    What's your relationship with ALS/MND?
    I am a friend of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    I have mitochondrial myopathy
    fishing camping needle work reading
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  • Last Activity: 08-17-2018 07:42 AM
  • Join Date: 09-20-2012


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