van1 is on a distinguished road

van1 van1 is offline

New Member

Visitor Messages

Showing Visitor Messages 1 to 2 of 2
  1. Bob1985
    04-26-2016 11:08 PM - permalink
    Bob1985
    I am sorry to hear that, I have been fighting for 10 years since being 21 years old. There are things you can do and get to slow it down. Experimental drugs, vitamins, etc. If you have any questions feel free to ask. There is always hope, als does not have to be fatal with a ventilator. Regards, Bob
  2. van1
    05-30-2015 01:47 PM - permalink
    van1
    I am joining the group. Last November I say a neurologist and he could not rule out ALS. My husband and I just got back from Mayo in Rochester with the diagnosis of probable ALS. My blood work and MRI were normal, but what concerned him was the EMG and Nerve conduction study. How do you keep hope when Mayo says the prognosis is not good?

About Me

  • About van1
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    12/2014
    City
    Oakes
    State or Province
    North Dakota
    Country
    US
    Occupation
    CPA

Statistics

Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 10-18-2017 02:15 PM
  • Join Date: 05-30-2015

Friends

Showing Friends 1 to 3 of 3

All times are GMT -5. The time now is 10:58 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016