van1 is on a distinguished road

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  1. Bob1985
    04-27-2016 12:08 AM - permalink
    I am sorry to hear that, I have been fighting for 10 years since being 21 years old. There are things you can do and get to slow it down. Experimental drugs, vitamins, etc. If you have any questions feel free to ask. There is always hope, als does not have to be fatal with a ventilator. Regards, Bob
  2. van1
    05-30-2015 02:47 PM - permalink
    I am joining the group. Last November I say a neurologist and he could not rule out ALS. My husband and I just got back from Mayo in Rochester with the diagnosis of probable ALS. My blood work and MRI were normal, but what concerned him was the EMG and Nerve conduction study. How do you keep hope when Mayo says the prognosis is not good?

About Me

  • About van1
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    North Dakota


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  • Last Activity: 09-24-2018 09:50 AM
  • Join Date: 05-30-2015


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