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tripete tripete is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 29
  1. tripete
    07-01-2017 05:10 AM - permalink
    tripete
    it was both mucus ans snot
  2. mich5
    06-27-2017 04:58 PM - permalink
    mich5
    hi Pete, the Alka seltzer, did you have mucus that was generated in your mouth or snot rolling down the back of your throat? I have the snot. :-)
  3. gooseberry
    12-31-2016 08:57 PM - permalink
    gooseberry
    Thinking of you Pete and your family. May you find peace and joy in 2017. Steph
  4. starente15
    11-28-2016 12:45 PM - permalink
    starente15
    Hi Pete, I can't believe I just saw this. I always think of you whenever I visit the board. I hope you are still doing okay despite everything.
  5. tripete
    09-06-2016 05:18 PM - permalink
    tripete
    Bill, Thanks again for the Lunasin. It is hard to tell if it is helping, but it got me started and my wife decided she wants me to keep going with it so it was helpful for us to make the decision. I will post on how my V.Alert goes please do the same.
  6. Duker52
    09-06-2016 03:46 PM - permalink
    Duker52
    Pete, thanks for the recommendation for the V.ALRT. I ordered one. I found of all the suggestions that this one was the smallest and easiest to attach to your body. Hope you're comfortable and that you're having some success with the Lunasin. Thanks again. Bill
  7. Duker52
    08-15-2016 02:50 PM - permalink
    Duker52
    Excellent!! I hope all the healing properties of Lunasin come your way. Please let me know how it goes.
  8. tripete
    08-15-2016 05:37 AM - permalink
    tripete
    Bill, I did receive it. THANK YOU very much. This will really help me to figure out if I want to try to keep buying the regiment.
  9. Duker52
    08-14-2016 07:25 PM - permalink
    Duker52
    Pete, just wondering if the Lunasin package made it to you. I included the containers that I had already opened, because I couldn't see wasting it. Bill Dukstein
  10. tripete
    05-26-2016 10:56 AM - permalink
    tripete
    No I consider the EMG to be the "Gold Standard" of test. As I had respiratory onset, which is rare, they where surprised when they did the EMG to see immediately that it was ALS (I had already had all the blood work done that eliminated other possibilities). I am not familiar with anyone who has had muscle weakness then has a clean EMG and it turn out to be ALS.

About Me

  • About tripete
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    12/2014
    City
    Lancaster
    State or Province
    PA
    Country
    US
    Occupation
    Stay at home dope
    Interests
    Running, Biking, Swimming, Triathlons, and Art
  • Signature
    ________________________________________ ____
    If I give into bitterness and anger then ALS has won.
    -Peter

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  • Last Activity: Yesterday 04:31 AM
  • Join Date: 12-05-2014

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