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Visitor Messages

Showing Visitor Messages 1 to 10 of 96
  1. skipper66
    03-09-2014 04:12 PM - permalink
    Thinking of you. Hope you are doing ok. I am anxious for spring to get here. I'm especially tired of ice. Take care, Kim
  2. skipper66
    11-21-2013 01:56 PM - permalink
    Hi Tom,
    Thinking of you! You're in my prayers. Kim
  3. Outdoor_Man_Nc
    11-16-2013 11:45 AM - permalink
    Bummer. Hope it works now.
  4. sobabya
    09-22-2013 09:03 PM - permalink
    my name is SONIA ABDUL,i am a young beautiful girl with a lovely heart . i saw your profile today and like to be your friend,You can write to me direct in my email( ) so that i will send more of my photo to you and tell you more about me.
    ( )
  5. skipper66
    09-04-2013 05:18 PM - permalink
    Hi Tom,
    How are you doing lately? I see where you have been dealing with this for a long time. How is your progression now? My dad will be 79 on the 11th. He was diagnosed with limb onset in May of 2012. Drop me a line when you get the chance. Take care, Kim
  6. chrisroski
    08-16-2013 12:26 PM - permalink
    Hi Tom, I was diagnosed in 2011 with bulbar als. I still am mobile, but now having some hand weakness and legs are getting heavy. I cannot speak, use iPad to communicate and also have a PEG. My neuro has been after to me to get the pacer. I am on bipap but finding breathing getting worse. My neuro like to have patients use pacer and the bipap. I read all about your experience with the surgery. Which I must say scared me a little. I was just wondering how you like the pacer, how much has it changed your life, good or bad. I am so terrified of hospitals and surgeries, that I am pondering this. Any Input would help.
  7. Nikki J
    07-03-2013 11:19 PM - permalink
    Nikki J
    Happy Birthday!
  8. Cindy Jo
    05-28-2013 11:13 PM - permalink
    Cindy Jo
    Hello, I am new to this forum. I have ALS and if my insurance appeal goes through, I will be getting the diaphragm pacemaker very soon. I am fortunate that I am still able to work full time and live alone! They are suggesting that I will want to keep the cable connected 24/7. As my left hand is getting weak. Any suggestions on something I can make that would secure the cable from getting pulled?
  9. skipper66
    03-29-2013 12:58 PM - permalink
    Wishing you and your family a Happy Easter.
  10. pearshoot
    03-14-2013 09:17 PM - permalink
    Had to postpone als clinic date. Fell and fractured three ribs. New date putme 15 days past three years since dx , so they refused to enroll me in new trial, still very disappointed

About Me

  • About tmasters
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    I have a wonderful wife & 4 kids, and a granddaughter
    Electrical Engineer


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  • Last Activity: 05-25-2016 01:57 AM
  • Join Date: 02-19-2008


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