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  1. skipper66
    09-13-2015 08:15 PM - permalink
    skipper66
    Hi Tracy,
    Thinking of you. Hugs, Kim
  2. autumnrain
    08-21-2015 01:52 PM - permalink
    autumnrain
    Thanks for your suggestion Texastracy! I have an appointment with my local Neuro on Monday and going to ask him to refer me to Dr Heitzman! I will keep you updated with any new development! Thank you so much and take care :)
  3. Diane H
    07-31-2015 11:51 AM - permalink
    Diane H
    I didn't have to make any changes to my sleeping arrangement because of the trach. I can sleep on my back or either side with no trach related problems.
    I have always slept on memory foam mattresses, so I could cut out sections and replace them with firmer or softer foam for best comfort and pressure relief. Recently I switched to a ROHO air mattress (under $200 on Amazon) and like it. It provides even better pressure relief.

    Anyway, don't worry about sleeping with the trach. As long as the vent hoses aren't pulling it sideways, you won't have a problem.
  4. lgelb
    07-25-2015 04:35 PM - permalink
    ♥ lgelb
    Hi, Tracy, just wanted to circle back and see if you were able to change your settings? Let me know if you want to walk through.
  5. lgelb
    07-23-2015 11:12 PM - permalink
    ♥ lgelb
    See [URL="https://www.dropbox.com/s/g25ohmgpbdll8hr/Trilogy%20100%20Clinician%20Manual.pdf?dl=0"]p. 66[/URL]
    https://www.dropbox.com/s/g25ohmgpbdll8hr/Trilogy%20100%20Clinician%20Manual.pdf?dl=0
    or the Quickstart guide:
    https://www.dropbox.com/s/14xi89z1z8boypi/Trilogy100QuickStartGuide.pdf?dl=0

    On phone now, let me know if you need more.
  6. lgelb
    07-23-2015 09:47 PM - permalink
    ♥ lgelb
    Hi, Tracy, the "target volume" on AVAPS can be set as low as you need it to be. Yours is probably set too high, so the machine is amping up the pressure more than you can handle (and likely need). It is a good idea, though, to run in AVAPS mode if you are experiencing air hunger, because that way your pressure can adjust according to your stage of sleep. I can tell you how to adjust it, or you can ask your RT to do it -- my gmail is lmgelb. Not knowing your height and condition, I would start the Vt at 400 or so and stop at the point where you have less air hunger and can handle the air flow. There are other settings like the length of each breath that might bear some adjustment as well. It's also possible the EPAP or range is set too high, if your IPAP is 21. Some RTs/docs don't like large intervals, though they can be very helpful in MND.
  7. dldred
    07-08-2015 09:54 AM - permalink
    dldred
    Happy Birthday !!
  8. skipper66
    03-12-2015 03:11 PM - permalink
    skipper66
    Hi Tracy,
    Thinking of you. Hope you are doing ok. My dad just had a 24 hr flu bug but thank goodness it didn't last any longer then that. The flu has hit the assistant living facility bad where he is living in Dallas. Many of the workers were off this week making them very short staffed. Dad can still talk, eat, and breath ok but he is losing most of his mobility now in all of his limbs. They are working with him on getting the eye gaze thing in place. Take care and hugs, Kim
  9. texastracy
    02-20-2015 10:05 AM - permalink
    texastracy
    I'm doing good. Enjoying retirement. Hope you are well also.
  10. skipper66
    02-19-2015 11:00 AM - permalink
    skipper66
    Hi Tracy,
    Thinking of you! Hope you are doing ok considering this monster. You are in my prayers. Kim

About Me

  • About texastracy
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    09/2013
    City
    Acuff
    State or Province
    TX
    Country
    US
    Biography
    I am an avid photographer, scrapbooker, Nascar fan, and mother of two wonderful kids aged 20 and 24.
    Occupation
    2nd grade teacher for 27 years
    Interests
    NASCAR - go 88
  • Signature
    "There is no pit so deep that God is not deeper still." Corrie Ten Boom

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  • Last Activity: 12-22-2015 11:35 AM
  • Join Date: 07-27-2013

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