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Visitor Messages

Showing Visitor Messages 1 to 6 of 6
  1. Atsugi
    02-13-2018 11:21 PM - permalink
    ♥ Atsugi
    Hey, Ted. Thanks for thinking of me. You are really one of the bright lights of our community, and I always look forward to your posts.

    WDW will be amazingly beautiful with excellent weather. Warmer and more humid than you're used too, of course. Expect 83*. During the Easter Weekend, it will be mega-crowded. I used to work as an electrician when we were building EPCOT in 1982. Now, it is huuuuuuge and beautiful. You'll have a wonderful time.

    And if you get the chance, I'd love to meet you, perhaps at your resort. But, of course, you'll have your schedule very full, trying to get it all in during only two days.

    Now that I think on it, I recently compiled a spreadsheet of temps and humidity for Orlando in the past 3 years, including the days when storms and rain occurred. Turns out that April is the inflection point where temps go up significantly from the 1st to the 30th. What day are you coming down?

    Don't you have private message capability yet?
  2. KarenNWendyn
    11-10-2017 05:21 PM - permalink
    Yakima is a bit far from me. I’m in Southern Oregon, just north of the California border. If you’re ever down this way, I’d love to meet up with you.
    I see my neurologist in a few weeks to discuss meds.
  3. KarenNWendyn
    11-07-2017 01:24 AM - permalink
    Hi Ted,
    Definitely LMN dominant. Weakness in lower legs progressing and getting a little weakness in mouth muscles. However I’ve decided I’m not a rapid progressor at all (compared to others on this forum); maybe even a slow progression. Back in July, I wasn’t sure I’d still be walking at this point, but I am. Doc wants to start me on Riluzole. I have some reservations about Radicava. How are you?
  4. Schickie
    09-20-2017 11:30 AM - permalink
    Good day Ted
    My name is Glen and i'm from saskatchewan if possible can you e-mail the latest from Bruce Bishop. My e-mail address is (removed by Mod-sent via pm) Thanks Glen
  5. ShiftKicker
    09-18-2017 08:37 PM - permalink
    ♥ ShiftKicker
    Ted, good luck with your appointment tomorrow at GF Strong! I hope you get info on any studies in the works and are able to sign up for something.
    Take care.

  6. Atsugi
    09-09-2017 02:55 PM - permalink
    ♥ Atsugi
    Hi Ted. I expect to be right in the middle of the storm, full force and all. I've done it before.

About Me

  • About Tedstehr
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    New Westminster
    State or Province
    I love to laugh and have fun visiting friends
    Solution Consultant - present software to sell
    Old home renovation


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  • Last Activity: Yesterday 12:38 PM
  • Join Date: 08-25-2017

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