Tedstehr's Profile Picture
Tedstehr is a jewel in the roughTedstehr is a jewel in the roughTedstehr is a jewel in the rough

Tedstehr Tedstehr is offline

Member

Visitor Messages

Showing Visitor Messages 1 to 7 of 7
  1. KarenNWendyn
    02-21-2018 09:42 AM - permalink
    KarenNWendyn
    Hi Ted,
    I’m still walking but slowing down quite a bit. Yeh, it seems like all my muscles are gradually getting weaker. I can still pretty much do everything I’ve always done with the exception of outdoor recreational activities. So it sounds like you’re noticing some progression despite Radicava? Hopefully it’s less than it would be without it. Love your posts!
  2. Atsugi
    02-13-2018 10:21 PM - permalink
    ♥ Atsugi
    Hey, Ted. Thanks for thinking of me. You are really one of the bright lights of our community, and I always look forward to your posts.

    WDW will be amazingly beautiful with excellent weather. Warmer and more humid than you're used too, of course. Expect 83*. During the Easter Weekend, it will be mega-crowded. I used to work as an electrician when we were building EPCOT in 1982. Now, it is huuuuuuge and beautiful. You'll have a wonderful time.

    And if you get the chance, I'd love to meet you, perhaps at your resort. But, of course, you'll have your schedule very full, trying to get it all in during only two days.

    Now that I think on it, I recently compiled a spreadsheet of temps and humidity for Orlando in the past 3 years, including the days when storms and rain occurred. Turns out that April is the inflection point where temps go up significantly from the 1st to the 30th. What day are you coming down?

    Don't you have private message capability yet?
  3. KarenNWendyn
    11-10-2017 04:21 PM - permalink
    KarenNWendyn
    Yakima is a bit far from me. I’m in Southern Oregon, just north of the California border. If you’re ever down this way, I’d love to meet up with you.
    I see my neurologist in a few weeks to discuss meds.
  4. KarenNWendyn
    11-07-2017 12:24 AM - permalink
    KarenNWendyn
    Hi Ted,
    Definitely LMN dominant. Weakness in lower legs progressing and getting a little weakness in mouth muscles. However I’ve decided I’m not a rapid progressor at all (compared to others on this forum); maybe even a slow progression. Back in July, I wasn’t sure I’d still be walking at this point, but I am. Doc wants to start me on Riluzole. I have some reservations about Radicava. How are you?
  5. Schickie
    09-20-2017 10:30 AM - permalink
    Schickie
    Good day Ted
    My name is Glen and i'm from saskatchewan if possible can you e-mail the latest from Bruce Bishop. My e-mail address is (removed by Mod-sent via pm) Thanks Glen
  6. ShiftKicker
    09-18-2017 07:37 PM - permalink
    ♥ ShiftKicker
    Ted, good luck with your appointment tomorrow at GF Strong! I hope you get info on any studies in the works and are able to sign up for something.
    Take care.

    ~Fiona
  7. Atsugi
    09-09-2017 01:55 PM - permalink
    ♥ Atsugi
    Hi Ted. I expect to be right in the middle of the storm, full force and all. I've done it before.

About Me

  • About Tedstehr
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    08/2017
    City
    New Westminster
    State or Province
    BC
    Country
    CA
    Biography
    I love to laugh and have fun visiting friends
    Occupation
    Solution Consultant - present software to sell
    Interests
    Old home renovation

Statistics

Total Posts
Visitor Messages
Total Thanks
General Information
  • Last Activity: 05-20-2018 11:33 PM
  • Join Date: 08-25-2017

Friends

Showing Friends 1 to 1 of 1

All times are GMT -5. The time now is 06:45 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016