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tdamess tdamess is offline

Very Helpful Member

Visitor Messages

Showing Visitor Messages 1 to 10 of 75
  1. EJTUNow
    05-30-2013 09:53 AM - permalink
    I am on the ALSTUN (ALS treat us now) steering committee, we invite you
    to ask us for more information.
    tell us if you’d like to join one of our teleconference calls.
    help us help you.
    e-mail address is
    best to you,
  2. EJTUNow
    04-02-2013 10:51 AM - permalink
    I Have ALS . Gilenya did not work for me
  3. Sequoia
    12-19-2012 01:56 PM - permalink
    My Christmas wish for you and your family is to live in Peace Harmony Laughter and Love and know how Beautiful You shine so bright with your Love and Light! I just want you know how much you mean to me ... we have never met in person, but you are known to me and stay in my heart. I feel we have been friends forever ....
  4. tdamess
    05-31-2012 09:46 PM - permalink
    still waiting for appt. but will call again when i get back from vacation , amy swatz at mass general is working with them .
  5. HelenL
    05-21-2012 09:06 AM - permalink
    When is it supposed to come? I saw something on the news last week about a woman testing it out so she could pick up a drink and drink from a straw herself... but it wasn't actually attached to her, but a separate robot. Sending you a hug, take care of yourself too!
  6. HelenL
    05-11-2012 11:49 AM - permalink
    That's good news about the robotic arm, keep us all posted as to how that works out. I'm doing ok, things have progressed, as I can't walk at all and my hands are going. Still working parttime, and feel ok.
  7. HelenL
    05-10-2012 01:11 PM - permalink
    Hi Ruth, haven't talked to you lately, just checking in to see how you're doing?
  8. krfriend
    02-20-2012 05:16 PM - permalink
    Hi on a thread you mentioned California for Stem cells and that Mass General is not doing them? do you have any updateds on that? did you find research in California? Thats where we are
  9. rose
    02-06-2012 09:15 PM - permalink
    What a coincidence! I was just thinking about you today, and wondering if you had recovered from the whole vertigo nightmare. How are you?
  10. Sequoia
    01-25-2012 01:49 PM - permalink
    I sent you a PM...let me know if you got it! Shaorn

About Me

  • About tdamess
    What's your relationship with ALS/MND?
    I am a family member of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    i am married,4 children,14 grandchildren
    foster mom to 4 teen girls
    to busy with the 4 girls to have any lol
  • Signature
    son has als 7/09 breaks my heart


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  • Last Activity: 02-25-2016 10:47 PM
  • Join Date: 07-28-2009


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