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Showing Visitor Messages 1 to 10 of 42
  1. trfogey
    12-27-2011 02:51 PM - permalink
    trfogey
    So glad to hear this good news. Hope you had a Merry Christmas and wishing you and yours a Happy New Year.
  2. trfogey
    12-12-2011 05:59 PM - permalink
    trfogey
    Hi, Sya,

    Every month that goes by without signs of progression definitely shifts the balance away from ALS, so I'd basically ask the neuro to lay out the specifics that she's basing her diagnosis on outside the bulbar region. As you know from reading out PLS forum, it's not unusual for UMN only symptoms to spread very slowly, over time periods measured in years, rather than weeks or months.

    I'm guessing that the neuro is repeating the EMGs every six months in hopes of catching the LMN problems she's expecting at the subclinical stage. Let's just hope and pray for another clean EMG so we don't have to check off anything else on the ALS checklist.
  3. sya15
    12-10-2011 10:00 PM - permalink
    sya15
    hi I haven't posted in awhile. Here's an update been 15mnths my Bf symptoms have not changed. speech is still the same no other symptoms. Going for 6mnth EMG Tues. Still wondering if it still comes back neg is bulbar ALS still a possibilit? Last time we saw the neuro in July she said ALS and PLS high on the list. I'll let you know the results.
  4. Kathylund
    11-03-2011 10:06 AM - permalink
    Kathylund
    I defiantly don't have it!! I talked to her yesterday, I'm worried about you!
  5. Kathylund
    10-15-2011 11:36 PM - permalink
    Kathylund
    thank's for the pep talk!
  6. Kathylund
    10-15-2011 10:28 AM - permalink
    Kathylund
    I am really freaking out, hopefully answers on Tuesday, new symptoms give me a call when your free, I would like to know what to expect, can't eat, can't sleep! How are u guys doing?
  7. Kathylund
    10-10-2011 11:04 PM - permalink
    Kathylund
    Really not sure, it was a scrambled mess, she said dr C will see you this coming Tue, the 18th so I am not really sure, hoping they call in the morn, but the message says they don't return calls on tue morn because they are in clinic. How did your dinner go?
  8. Kathylund
    10-10-2011 10:54 PM - permalink
    Kathylund
    They know, but who knows what will happen to him. Its all over the news today, his best friend plays for the lions, was supposed to play tonight but was so broken up he couldent, so sad
  9. Kathylund
    10-05-2011 10:47 PM - permalink
    Kathylund
    You had a rough day, try to get some sleep and try not to worry, I know how hard that is, if you need to talk day or night call me, I always answer my cell, kathy
  10. Kathylund
    10-05-2011 09:14 PM - permalink
    Kathylund
    Thank you for doing that for me, you are so sweet!!!!

About Me

  • About sya15
    What's your relationship with ALS/MND?
    I am a friend of someone with ALS/MND.
    If diagnosed, when was the diagnosis?
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    middletown
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    ct
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  • Last Activity: 12-15-2012 03:14 AM
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