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susanf susanf is offline

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Visitor Messages

Showing Visitor Messages 191 to 196 of 196
  1. VoiceforLinda
    06-26-2011 02:34 AM - permalink
    Hi Susan, I am hanging in there. How are you holding up? I know this is a very scary and stressful time right now. Hang in there. Thanks for the contact.
  2. susanf
    05-28-2011 12:18 PM - permalink
    Good morning and thank you. I'm still in limbo, going to USF soon to get a second opinion. I have to think positive no matter what the outcome. Easier said than done but I'll give it my best shot. Have a great weekend and thank you for thinking of me :)
  3. daddypix
    05-28-2011 10:56 AM - permalink
    Good morning susan how are you holding up.I was just checking on you, hope you got some sleep.I ve been stressing myself out lately about als and i know how you feel i also have a daughter and it scares me to death to think she might could fall victim to this stuff.Hope ya ll have a good weekend.
  4. susanf
    05-26-2011 09:29 PM - permalink
    Thank you, I'm just scared to bits right now. I keep thinking about my 11year old daughter and if it inherited. There is just so much to think about.
    Thank you everyone :)
  5. Alyoop
    05-26-2011 06:42 PM - permalink
    Hi Susan, sorry about your possible ALS diagnosis. Welcome to the forum and I hope you will find it helpful and supportive.
  6. susanf
    05-26-2011 01:52 PM - permalink
    Hi Everyone,
    I just came back from my neuro today and he referred me for a 2nd opinion. I'm beside myself. He said emg shows 3 levels of failure to diagnose ALS. He was pretty sure it's als but he always refers out for a second opinion. I failed 2 but passed the 3rd. I'm having speech difficulty mostly when I'm stressed, some swallowing problems maybe one or twice a week.
    All started last Feb 2110 That week I started twitching at night. No weakness anywhere, going all day without a problem, just twitching at night. In May 2110 and my speech began to slur when I was tired. The speech thing went on and off until this Dec when it progressively got worse. My mri shows bilateral degeneration. He asked me if I ever tried to commit suicide (i didn't) or if I ever lost oxygen. I have no weakness and all the als physical tests like jumping jacks, hopping on one foot, balancing on balls of foot on the edge of a curb and walking down stairs backwards, I can do with no problem.

About Me

  • About susanf
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    Palm Harbor
    State or Province


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  • Last Activity: 01-27-2013 04:23 PM
  • Join Date: 05-26-2011


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