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SueG is on a distinguished road

SueG SueG is offline


Visitor Messages

Showing Visitor Messages 1 to 10 of 36
  1. HelenL
    03-28-2013 11:58 AM - permalink
    hi Sue, I'm on the forum less these days as well as it gets harder and harder for me to type. I've been using Dragon a lot more but it does come up with some funky spellings! are you still going to Mass General? I haven't been there since the Dex trial stopped and I don't think I'll qualify for the stem cell trial, but I'm keeping my hopes up for that. Love you girl! Helen
  2. HelenL
    03-22-2013 04:57 PM - permalink
    Hi Sue, hope you are well... recently you posted some info on audiobooks but I can't find it... could you send me the link when you get a chance? Thanks!
  3. Sequoia
    12-25-2012 03:01 PM - permalink
    So sorry about your weeks in hospital. Is dex. Making you sick? I have been taken dex for 4 months now, so far no symptoms . Keep you in my prayers! Merry christmas!
  4. Sequoia
    12-19-2012 02:00 PM - permalink
    My Christmas wish for you and your family is to live in Peace Harmony Laughter and Love and know how Beautiful You shine so bright with your Love and Light! I just want you know how much you mean to me ... we have never met in person, but you are known to me and stay in my heart. I feel we have been friends forever ....
  5. pscheffel
    10-11-2012 09:51 AM - permalink
    Sue, thank you, and may God bless you!
  6. pscheffel
    10-04-2012 11:04 AM - permalink
    Hi Sue, I noticed you recently posted that you've had 2 friends with Bulbar ALS pass away before losing their ability to ambulate. My Mom has Bulbar onset and still walks pretty well, but no longer has swallowing capabilities. Can I ask you what ultimately caused your friends' passing? I'm afraid of aspirating and/or pneumonia at this point. I'm hoping you are in good spirits! Thank you!
  7. skipper66
    09-27-2012 02:58 PM - permalink
    Hi Sue,
    How are you doing? My dad is staying pretty much the same lately. He is still able to eat on his own even though it takes awhile. He gets around with a walker when he's home but uses a manual wheelchair when he goes out. His speech kind of comes and goes. One time it is perfectly clear and then the next garbled. His breathing has never been too bad but he does use a bi-pap at night and he sleeps 100% better with it. Dad does take ritulek but I'm not sure if it helps or not. Take care, Kim
  8. dberbicegirl
    08-07-2012 10:55 AM - permalink
    Hi Sue:
    Just checking in to see how you are doing? My brother is not doing well. His speech is almost gone and is losing the use of his arms. My heart breaks for him, and feel so helpless. I try to cheer him up day to day, but he has difficulty accepting the deterioration. I pray for each and every one of you.
  9. Ms. Pie
    06-28-2012 01:24 PM - permalink
    Ms. Pie
    Hi Sue! Yes very hot and very dry. It weighs heavily on all of us. I feel bad for the displaced people and animals. We're fine though. Thanks for checking on me! How are you doing Sweets?
  10. dberbicegirl
    06-14-2012 09:55 PM - permalink
    Hi Sue how are you doing?

About Me

  • About SueG
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    outdoorsy, formerly active, happily married, young-adult son & daughter, country girl
    conservation biologist & market gardener ( emeritus)
    gardening, hiking, cooking, singing (formerly...), reading, travel


Total Posts
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  • Last Activity: 04-13-2013 09:44 AM
  • Join Date: 09-30-2010


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