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starente15 starente15 is offline

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Visitor Messages

Showing Visitor Messages 1 to 4 of 4
  1. tripete
    09-22-2016 10:39 AM - permalink
    tripete
    Hi Star, I am still plugging away. How are you?
  2. Riggz10
    06-07-2016 12:27 PM - permalink
    Riggz10
    Hey starente - can you please read my recent thread and let me know your thoughts. You seem to have very good knowledge.
  3. starente15
    01-22-2015 08:19 AM - permalink
    starente15
    Hi Nancy! Sorry we have to 'meet' this way but I'm really glad you found me. As I was reading, I felt like I could have written your message. It's so similar. My dad has also lost 50 lbs and I found the comment about the 'sick' diaphragm interesting. I never would have made that connection. Just some general questions: by any chance, is your husband a vet? how long since diagnosis?, have you been to the first clinic yet? Please stay in touch! Christine
  4. NeedCourage
    01-18-2015 08:49 PM - permalink
    NeedCourage
    Hello starente!
    I saw your new post on diaphragm onset; looks like we are in the same club.
    My husband, age 77, is the same. Some weakness in legs but still can drive, walk around the house, get in and our of bed ... but uses the trilogy vent at night and a couple of times during the day. Can't walk a half a block - not because legs give out but because of lack of breath. He lost almost 50 pounds almost immediately because (as I am told) his metabolism was so revved up trying to breath that it was on overdrive. Ironically, the position of the 'sick' diaphragm made him feel full and eating was a massive problem. Anyway... please contact me if you wish to talk - I know there are very few of us here with this particular set of circumstances... You will run into a few others. Glad I saw your message! Nancy

About Me

  • About starente15
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Northern
    State or Province
    NJ
    Country
    US
  • Signature
    Best,
    Christine

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  • Last Activity: 12-12-2017 09:29 PM
  • Join Date: 10-27-2014

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