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Signe Signe is offline

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  1. jnikes
    09-23-2017 10:28 PM - permalink
    Please know you are not alone, and it is more likely that you will receive good news than bad news when you go to the ALS clinic. I have an appointment with the boston clinic in november. Also, definitely check for lyme, I had a negative test but am doing another thats supposed to be more extensive and accurate. Please feel free to reach out if you ever want to chat. take care, Jeff
  2. jnikes
    09-23-2017 10:28 PM - permalink
    Hi Signe, Good evening. I am sorry you are dealing with this. I'm reaching out because I am currently exhibiting some concerning symptoms and am worried about FALS as well. Doctors and folks on this thread have been telling me I may be having a PTSD sort of reaction as well.. So good news, that does exist, particularly in those that have watch a loved one succumb to the disease. My mother died of ALS at 52. I am only 26 and have been experiencing fasciculations throughout my whole body, clumsy hands with poor dexterity, dropping things often, stiffness in my neck, and weakness in both legs. I wanted to offer you moral support as it can be lonely going through all this. I started to notice my symptoms 3 months ago and in hindsight can trace them back about 6-8 months.

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  • About Signe
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
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  • Last Activity: 07-20-2018 05:54 PM
  • Join Date: 08-17-2017

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