serenade

Rest in Peace Judy.

so sorry you suffered thur that , but very glad to hear things are much better

how did the symbcort and singular work for you

Hey Judy!
I haven't seen many posts from you lately and was wondering how you were doing and how things were going. I hope all is well with you.
Take care and let us hear from you soon.
Love and hugs!
Linda

Her speech is no longer very good, and she gets around the house some with a walker, but very limited. Just recently she has become unable to do stairs and I carry her up and down - Wasn't doing them well before, but just had to steady her then. Not very easy for us to access the drug trial here, and we are hoping to get more or less the same effect this way as the trial. Seems like many on this forum don't draw a connection between lyme and als, but seems like a possibility to me. Even if there is not, at least we have something to try. I was wondering the other day after reading your posts - do you know when the trials you are in will end, and what happens if they decide to approve the ceftriaxone as an als treatment? Sure would be nice to make insurance pay up on the drugs.

Thanks,
Roger

Hi Judy,
Leah has been bouncing around some with iv's. Her dr. switched her onto azithromycin, and then to cephotaxime (not sure I spelled those right) for awhile. We asked her the other day to go back on the ceftriaxone, and started up again with that yesterday. I see your posts once in awhile, and it sounds like you are actually improving a little. That's great. Appreciate you sharing what is happening. Leah was on the ceftriaxone for about 4 months, and seemed to be in a holding pattern until about 3 1/2. She kind of dropped off quickly then, and dr. decided to try some other iv drugs. She is a lyme dr., and there are not many around here. Seems like since january Leah has fallen off a lot. (Told me I had too many words so I'll post another pm.)

Thanks soooo much, Linda

Thank you for your voice of reason.

Thanks so much for the information. I can't wait to try it... Hugs, L

Hi Judy Hope your day is good, we are keeping the long tube for now. Will be getting in touch with a nurse at the VA, per doctors recommendation, and then will see doc again in a couple of months. This doc we saw was honest with us and said he really didn't know which tube is better, so he told us to talk to the "expert" his nurse, who was on vacation. At least he was honest!Hugs Lori