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Sequoia Sequoia is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 717
  1. mmuncher
    05-11-2014 01:44 PM - permalink
    Hi, Sequoia. I am interested in a self-trial of Gilenya. My diagnosis is fairly recent and my neurologist seems reluctant to prescribe off-label, so I am exploring additional options. I would be happy to discuss the way forward. Regards,
  2. caro
    12-25-2013 07:57 AM - permalink
    Merry Christmas my dear friend! I was a "Sequoia" car yesterday and smiled with all my heart. I know that you are with Jesus this you always!
  3. Jellycat
    06-08-2013 08:02 PM - permalink
    Dear Sharon,
    I'm back on after a long time and am shocked to learn you have passed on. I know you are enfolded in God's love now and have met all our pals. Thinking of you with gratitude tonight xx
  4. Jellycat
    06-08-2013 08:01 PM - permalink
    Double post - in error
  5. ottawa girl
    05-17-2013 11:15 AM - permalink
    ottawa girl
    Thinking of you!
  6. ottawa girl
    04-02-2013 08:36 PM - permalink
    ottawa girl
    Dearest Sharon. I thought about you this Easter. Missing you, especially as I approach one year anniversary since diagnosis on the 5th. Scared about the coming year. How life will change. Leaving Tuesday for Lourdes. I shall remember you there. Just as you asked.
  7. caro
    03-31-2013 05:51 AM - permalink
    Happy Easter Dear Sharon! Love you...
  8. ottawa girl
    02-22-2013 08:45 AM - permalink
    ottawa girl
    Sweet Sharon, I miss you. I wanted you to know I am going to Lourdes after all. Just like you said I would. I will pray for you there, just as you asked. I feel you helping me from afar. Thank you! Please pray for me too.
  9. KissJ
    02-21-2013 09:39 PM - permalink
    I miss you Sequoia. Please ask God to help us on Earth to understand why there isn't a cure for this horrible monster!!
  10. Georgia Peach
    02-15-2013 10:49 AM - permalink
    Georgia Peach
    I came back to the Forum to send you a message. I didn't know it was going to heaven. Thanks for being my friend.

About Me

  • About Sequoia
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    I am a friend of the poor, in love with God
    loving others, praying for the needs of the world
    hiking mountains, nature, frienships, writing, social justice, On the ALS-Treat Us Now Steering C
  • Signature
    "I lift up my eyes to the mountains from where comes my strength!"
    ALS-Treat Us Now!


Total Posts
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General Information
  • Last Activity: 01-13-2013 01:09 PM
  • Join Date: 09-19-2010


Showing Friends 1 to 10 of 84

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