Obviously, I don't know anything about you but I just have to say that for some reason I am compelled to tell you that your posts are wonderful. I am just a mom with 6 kids, that doesn't get out much . I am pretty poor (since I am married to a school teacher lol) and I don't get much adult conversation, so I guess me thinking your great isn't much of a compliment but none the less I think you are great! Thank you for taking your time to help me :)
The best thing to do in this situation is to ask someone that you trust -- someone that you know will give you a straight answer if you ask for it -- whether your speech sounds funny to them. I don't have any personal experience with bulbar symptoms myself (one blessing to be thankful for), but the people that I trust on the subject say that the earliest symptoms of bulbar ALS are slurring your words -- like when you're a little intoxicated -- and that other people noticed it before they did. A couple of guys I know got accused of being drunk on the job, much to their surprise.
I'm guessing that you're not slurring your words. Given your concerns about ALS, I'm sure the neuro listened very closely when you were talking to him to see if he detected any speech problems. That he didn't notice any is a good sign.
Question, I figured I would go staright to you becasue you always give me info I trust. Today I feel like my throat is tight and my speech is slurred. I can't tell if its really slurred. I keep on trying to "self test" my tongue. I don't seem to have any restricted tongue activity, my tongue doesn't look weird, but I feel "lispy" . I'm scared to death!
thanks. i know the questions probably drive you nuts. its not easy to "wait and see" im trying not to drive myself over the edge with worry until december, but im not doing very well with that task. thanks again.
Being put on "wait and see" by a neuro is not unusual, unfortunately, especially when they are trying to distinguish between an acute condition (like an injury) or a chronic condition (a progressive disease like MND or MS). Cramps are one thing to keep an eye on until they come up with a cause, but that can be really difficult at times. If your neuro exam came out normal, the next step is probably an orthopedist or maybe a chiropractor. Years of tending to and toting kids around can wreak havoc on your back and neck. Ask your GP if he thinks some physical therapy might help.
I know you are not a Dr. BUT your info is very helpful. Obviously I am one of those people you would probably call "the worriers". I just wanted to ask what you thought about cramps. I have been put on "wait and see" by the neuro. I had a post about my random symptoms and I appreciated your imput. So, (hopefully you wont mind) I wanted to ask what you thought about cramps I am having in bottoms of both feet. Its a cramp that makes my second toe bend backwards. I dont think I have weakness yet ? Do think these kind of toe/foot cramps are MND related? Thank you.