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  1. reebabs
    02-01-2012 08:10 AM - permalink
    thank you both for this info. There is so much info to read to stay informed. And I agree with you about patience.
  2. Alyoop
    01-27-2012 04:16 PM - permalink
    Ms cannot be diagnosed until 2 specific " attachs" have occurred. They can be months or years apart. Sometimes people will have transverse myelitis then not have a second episode for years. You can indeed have MS with a clear MRI, but it is unusual. If that occurred, time and patience is needed to just wait and see whether the condition is MS. I personally had 2 sets of MRI during the diagnostic process, 2 years apart, which were both clear. I did not have sensory issues apart from a predisposition to pressure palsies. I was a bit disappointed that I did not have ms because disease modifying agents are available and the efficacy of the treatments are improving all the time.
    I still doubt that I have PLS, but again time will tell. You certainly need a great deal of patience, when a player in this game!
    Ask any questions you want. Hope this helps a bit. My husband is a neurologist and I did ask him on your behalf.
  3. AKmom
    01-25-2012 02:15 PM - permalink
    Aly's nickname is Alyoop. Just do a search (top right, under your name. )
    You should be able to find her that way. I am on my phone app right now and have not figured out how to copy and paste on it yet.

About Me

  • About reebabs
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    Grand Rapids
    State or Province


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  • Last Activity: 12-05-2013 04:33 PM
  • Join Date: 01-19-2012

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