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Showing Visitor Messages 1 to 10 of 33
  1. LynnC
    05-05-2013 12:58 PM - permalink
    Hi Patricia,

    I saw on the message boards that you've had experience with Dr. Rothstein. My sister-in-law is considering getting a 2nd opinion from him, as she was recently diagnosed with ALS. During your appointment, did they discuss treatment options and the research they're doing? I know Dr. Rothstein will definitely be able to rule the ALS is or out, but we're really hoping to get some type of treatment plan also. Thanks so much for any more information!

    ~ Lynn
  2. Sequoia
    12-30-2012 12:44 PM - permalink
    Yes, it will be peaceful when the lord calls us home
    love you
  3. Sequoia
    12-29-2012 12:30 PM - permalink
    May we let go of anything that troubles us, and let this new year sparkle with love, kindness, and joy~ love you my friend
  4. Sequoia
    12-19-2012 03:33 PM - permalink
    My Christmas wish for you and your family is to live in Peace Harmony Laughter and Love and know how Beautiful You shine so bright with your Love and Light! I just want you know how much you mean to me ... we have never met in person, but you are known to me and stay in my heart. I feel we have been friends forever ....
  5. anxious06
    09-08-2012 10:07 AM - permalink
    Hi Patricia,

    Good day. I saw in one of your posts that your PALS have twitching before weakness. And that his EMG was clean only to have it "dirty" a few months later. I got a clean EMG just this Wednesday. The neurologists test both my legs and left arm. all were negative. I dont have other symptoms other than twitching. Did your PALS only have twitching as his first symptom or there are other things? Is he Bulbar onset? thanks a lot.

  6. jessica1983
    06-16-2012 10:10 PM - permalink
    hi just wannna thank you for you time on this forum, ur very helpful!!
  7. patricia1
    06-10-2012 01:32 PM - permalink
    l guess if they did my tongue it would have been positive but that was obvious
    l eventually got a dirty emg but not right away
  8. notme
    06-10-2012 09:39 AM - permalink
    HI Patricia. I wasn't arguing with you--was just surprised. My EMG in my legs is clear--and it's obvious even to the doctors that something is dreadfully wrong--we just don't know what--because it's all UMN. Arm EMG has never been clean on mine.
  9. patricia1
    01-22-2012 09:10 PM - permalink
    no but everything l read it starts good and ends bad
  10. Sequoia
    01-22-2012 08:00 PM - permalink
    For some it has improved strength and slowing of progression. Are you in the trial? Maybe you are on the placebo

About Me

  • About patricia1
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    lopatcong NJ
    State or Province
    Married 45 years to my wonderful husband Joe Two Children Jon & Josette and four Grandchildren
    Retired Medical Assistant
    Cooking Sewing Fishing and hanging with my grandchildren


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  • Last Activity: 07-07-2014 12:51 AM
  • Join Date: 09-18-2006


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