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Visitor Messages

Showing Visitor Messages 1 to 10 of 118
  1. sarah loves mya
    05-22-2016 02:52 AM - permalink
    sarah loves mya
    Hey Olly I was just diagnosed with hypertonia and was wondering if you had a stiff feeling in your leg when you wake up and throughout the day or should I go back to my docto
  2. cturk
    01-23-2015 12:58 PM - permalink
    hey olly, i am new to the forums and saw some of your posts. I am looking for some answers regarding my symptoms and would love to ask you a few questions!
  3. olly
    10-23-2014 03:45 PM - permalink
    Hi thank you for your messages.
    My son was diagnosed with non hodgkins lymphoma...at first they thought it was aggressive but since decided not and have put him on watch and wait till January ,so no treatment yet for that.
    However they suspected with his symptoms that something else is going on also.
    They suspect lupus or other systemic/connective tissue disease and he has been tested for these,just waiting for appointment for results.
    He has been seriously ill....lost 18lbs ,severe muscle fatigue and compromised immune system also huge lymph nodes up in groin,under arms and neck.
    He has had literally every test done for viral/bacterial infection etc etc but they said he has nothing like that,some weeks they have taken 10 vials of blood for testing.
    So that's all there is to tell just now,its taken its toll on my health which has caused a decline in my pls.
    Will try to look in again when I can.
    Love to you all xxx
  4. KeeKer
    10-15-2014 01:25 AM - permalink
    Caroline! I am so sorry about your son!! If he is strong like his mother he will beat it! Good luck to you both!
  5. IhavePLS
    09-06-2014 10:02 AM - permalink
    Caroline, I am so very sorry to hear of your son's illness. You are both in my thoughts and prayers.

  6. Nikki J
    08-24-2014 02:47 PM - permalink
    Nikki J
    Sending healing wishes to your so and to you. Sorry to hear of his illness
  7. olly
    08-21-2014 07:17 AM - permalink
    To my dear friends and forum family.
    I have not been able to get on the forum and contribute much since the start of the year.
    This is due to health problems and other things going on,things have been tough.
    My son and only child has been ill also since early this year and sadly he has been diagnosed with cancer at 25yrs old.
    He is due to start chemo and then a bone marrow transplant...the next year is going to be hard.
    I have to focus 100% on my son so wont be here very much,just look in once in a while to keep updated.
    You all are always in my thoughts and will continue to be.
  8. AKmom
    06-28-2014 12:01 AM - permalink
    Hi Caroline! Hope all is well with you. I have missed you. Been away for a while. Needed a break from all the losses we were having. How are things on the other side of the world? Hugs, Joyce
  9. adozi
    06-06-2014 06:19 PM - permalink
    I'm okay! My eye gaze computer wasn't working for 20 days recently (well we didn't send it back for a week because it was still kind of working), thank goodness Brian D introduced mE to the Speakbook. Otherwise, it would have been even more frustrating. Hope you're well! Love your new profile picture!
  10. Barbie
    06-06-2014 05:11 PM - permalink
    Hey, we are friends now. LOL

    I am going to visit my oldest son next weekend for 3 day. OMG--I can't wait! I feel bad my poor husband can not travel at all. way too much work and no fun for him or me.

About Me

  • About olly
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    I am a baptised christian and animal lover.
    retired due to illness with pls/mnd
    Arts and crafts when i still can,hands permitting.


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  • Last Activity: 05-29-2017 10:25 AM
  • Join Date: 01-10-2008


Showing Friends 1 to 10 of 86

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