Okie2

Just stopped by to wish you a Happy Easter. Take care, Kim

Hi! How are things going for you lately? My dad is doing so-so I'd say. With this disease its hard to gauge. He is still able to talk and eat on his own. He can take steps but has to have someone holding on his gait belt and use a walker. He is in good spirits most of the time. He kills the time by watching alot of movies on Netflix. Hope you are doing okay. You are in my prayers. Kim

Love your daughter's sense of humor!

Hi, Okie- It's been awhile; not to be so personal but did you ever get your "bowel issues" straightened out? We talked about that last June. We make 2 steps forward then 1 step back- very discouraging.
Hope you are as well as can be expected. Marianne

Hi Okie 2, I just registered to the forum and live in Oklahoma. My dad was diagnosed in January and I have been exploring the resources available ever since. I live in Tahlequah and he and my mom live in Catoosa. He hasn't lost mobility just yet, but has very little motor skills left and also has a form of dementia coupled with the disease. His biggest difficulty is speaking so I was hoping to be able to get some input from others' experiences about anything we might be able to do to aide his frustration with communication. Because of the motor skill problems he can't write or text well, so we are sort of at a loss. I'm glad to be connected now to what seems to be a very supportive and helpful group. I will be trying to get my mom to join this weekend. Any advice or words of wisdom is welcome.

Hi! Haven't heard from you in awhile. How are you getting along? My dad is using a bi-pap now just at night when he's sleeping. He is sleeping 100% better and has more energy now during the day. My dad has a tendency to be claustrophic but handles the bi-pap well. Take care of yourself and drop a line when you have time. Kim

You are posting on your own visitor site instead of the person your writing too. So, they might not see your messages you send them. Kim

Hi! How are things going for you? My dad is staying pretty stable at the moment. He uses a bi-pap just at night and he sleeps 100% better. His favorite thing to do right now since he's not very mobile is to go to the movie theatres. He goes to about every movie that comes out. My mom and dad used to own movie theatres in our small town when I was growing up. It was great. Take Care and drop me a note when you have time. Kim

I am glad he gets to come see you. The vets should really be able to help in many ways. Good luck. I am doing well, trying to stay cool and still get out and enjoy our yard.

Hi Okie,
How are things going with you lately. My dad just recently had his second appointment with a ALS specialist in Dallas and he confirmed that dad does have ALS. My dad is a veteran and is checking on coverage for Ritulek. He is also going to be participating in some clincal trial will soon. He is coming up this coming up Monday, July 9th for around twelve days. I'm so hapy since I haven't seen him since Memorial weekend. Dad wants to move home for good so we are going to all work together as a family and see what can be worked out. Just taking it one day at a time. Take care and drop a line anytime. Kim