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Showing Visitor Messages 1 to 10 of 30
  1. skipper66
    11-23-2018 04:36 PM - permalink
    I was so sorry to read about the passing of Matt. I'm not on here as much as I used to be. It was 3 years on Nov 21st since my dad passed away of the monster disease. I will pray for peace and comfort for you. Sending you a huge hug, Kim (Skipper)
  2. skipper66
    12-25-2017 02:37 PM - permalink
    Merry Christmas Becky. I think of you often. I'm doing ok. I'm not on here as much as I used to be. I miss my dad but have many beautiful memories of him. It was 2 years ago on November 21st since this monster got him. Hugs and prayers, Kim
  3. Reivillalobos
    10-21-2017 04:05 PM - permalink
    Hi Nuts,
    I hope you are doing great; I’m not trying to bother you or rush you in any way. I just would like to know if you send the urine bags my way or if you haven’t and would like me to pay for the shipping that would be fine as well.
    Thank you again!
  4. chally
    06-01-2017 07:58 AM - permalink
    Hey Becky, just wanted to say hi and hope your trip went well.
    Is Matt still doing lunasin? I am, and have been religiously since last June.
    Wondering how and when they're gonna cut me off. Have not heard from bedlack for 6 mons.
    I suggested since I reported and did two shakes daily for a year that they continue to supply the stuff free as a bonus for going the whole 9 yds.
    What do you guys think? Was it good for Matt? I can't really say cause got nothing to compare with.
    Certainly no reversal! But maybe slow down.
    Hope your well . Good thoughts to Matt. Beth is strong and plowing along. Thank god for va.
    Love ya. Chally
  5. skipper66
    11-22-2016 02:04 PM - permalink
    Happy Thanksgiving!
  6. bmm2006
    10-31-2016 06:32 AM - permalink
    Hey Nuts
    My name is Brent and I've made a few posts here to get some feedback about what I'm going through. I still don't have an answer yet, so I'm still working through it. I see that you are in Littleton, NC! I'm in Roanoke Rapids! I was wondering if you had any recommendations on a Neuro to see? I've been to Greenville and Rocky Mount. But I was curious if you had a "go-to" one that you guys love. I hope all is well as well can be.

    Thank you,
  7. skipper66
    07-23-2016 04:34 PM - permalink
    Sending you a big hug. Wish there was something I could do to take the pain away. I hope it is of some comfort to know that I care and pray for you. Love, Kim
  8. Chiffonrayburrel
    05-05-2016 03:38 PM - permalink
    Hello Nuts I am sorry I did not respond to my last post. The last time I saw my Doctor in October she was thinking about sending me to a neuro. But I haven't been back since then . My main problems now are my tight legs when I wake up . I have to stretch each and Every time . I feel off balance when I don't have my compression socks or pants on(they help a lot )just feeling weak in my legs . But I can still do everything I need to do.
  9. skipper66
    04-16-2016 01:24 AM - permalink
    How are things going? I'm on here quite often but don't feel like I have much to contribute anymore so I don't post much. I miss everybody though. I am doing decent. Miss my dad alot but not he's in a better place. He wasn't overly young either at 81. I attend a grief support group every two weeks. It helps to talk it out. I was in the hospital a day last week. I had to have surgery to remove a kidney stone. It was extremely painful. Take care, Kim
  10. MattM
    01-23-2016 10:37 AM - permalink
    Hi, I made a post about half hour ago and its not showing up? how long does it take mods to approve normally?

About Me

  • About Nuts
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    North Carolina
    Retired USAF and former school teacher


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