notme is on a distinguished road

notme notme is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 331
  1. Clearwater AL
    08-28-2013 02:54 PM - permalink
    Clearwater AL
    I read your "sticky" about "Muscle Fatigue vs Weakness" and found it very interesting and informative. You stated that weakness was being unable to lift your arm, unable to lift your leg, unable to stand on your tippy toes, unable to hold something or push a button... but didn't it start with noticeable fatigue progressively getting worse? Or, did it happen practically overnight or within days? I have been to the ALS Clinic at Duke University for tests. No diagnosis as of yet BUT the doctor would not rule out ALS.
    My neuro doctor will not rule it out as of yet either. I'm a new member, posted "Beginning the journey.'
  2. machaffi
    07-26-2013 03:10 PM - permalink
    Just checking on you hope all is well i have not been on for a while.
  3. paul71
    06-24-2013 12:09 PM - permalink
    Add me to the list of people checking up on you. I tried PM'ing but your inbox is full. Alot of people miss your wisdom and empathy. I hope you're doing okay and decide to pop back in once in a while. Take care.
  4. olly
    06-19-2013 08:33 AM - permalink
    Hi,it was me who wrote fb message as we were so very worried.
    Please dont let anyone push you away,we love you and need you here.
    I am relieved you are ok,thankyou for getting in touch.
  5. Barbie
    06-07-2013 11:14 AM - permalink
    Hi Patty, will you PM next time you are on? I am worrying a bout you. and miss you too!
  6. Nighthawk
    05-02-2013 10:59 PM - permalink
    I miss your fairness and tenderness on each one of your posts here.
    We really miss you, my friend. Hope to see you back soon.
  7. vickim
    04-29-2013 09:21 PM - permalink
    Hi Patty

    Been worried about you. Hope to hear from you soon. Love ya. Miss ya.
  8. olly
    04-25-2013 11:28 AM - permalink
    Hi patty.
    I have not been on the forum for some weeks and noticed you have not also.
    Is everything ok? I hope nothing serious has happened.
    Please get in touch as soon as your able and let me know.
    I can not pm you as your pm box is full up.
    Miss you (((hugs)))caroline.
  9. Barbie
    04-22-2013 05:23 PM - permalink
    Hi Patty, was just thinking that you have been very quiet lately. hope all is OK. Some of the crazies have been needing to talk to you...
  10. machaffi
    03-31-2013 06:09 PM - permalink
    Just wanted to stop by and say hello and hope you are doing as well as can be.

About Me

  • About notme
    What's your relationship with ALS/MND?
    I have been diagnosed with ALS.
    If diagnosed, when was the diagnosis?
    State or Province
    I'm 50 years old--and most days feel eighty. Have lived all over the coutnry and Canada.
    author--I also teach nursing assisting
  • Signature
    Pay it Forward!
    It can only be ALS when it can't be anything else
    Every day wasted is gone forever


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  • Last Activity: 06-19-2013 11:32 PM
  • Join Date: 04-03-2011


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