notme

I've adapted pretty well to the disuse of my left hand.

Yesterday, we had to fill out paperwork for a new roommate to move in. The stack of papers were 1/4 inch thick. I lost it. I can't WRITE. I can't remember things. Just getting to the main office was a struggle as I can barely do the stairs here--let alone walk to the office.

So many of you here are so much worse off than I am. I read about Barry--and he keeps smiling. So many others that are so much worse...

Since I'm upsetting so many by posting in the forums--I figure it's okay to write here.

I'm going today to the neuro the crappy insurance approved--we'll see if they will do the EMG/NCV the neurosurgeon said I need--although the insurance only approved an EMG on one arm--despite the order being written for both.

I'm probably wasting my time--but doing nothing is driving me insane.

I think I feel too generally SICK for this to be ALS. I feel like I've...

Apparently, I'm too verbose. Feel free to exit at this time; the door way is at the top left of your screen (a little arrow that points left. You can GO now)

I'm one of those people that tries to fix the world. I've always been a fixer. I don't know that I could be any other way.

I'm here to tell you--people in the medical field make the WORST patients!

It sucks--none of your friends want to hear health issues--doctors, half the time, don't listen--in...

I have a blog on blogger--it's my 'public' me. The author blog.

I always try to keep it upbeat. None of my friends in the real world know I'm sick. None of them know I might have ALS.

Some days, even while I'm not diagnosed, I just sit and think worse case scenarios all day. I have a hard time getting myself into a positive frame of mind some days.

It helps to come read here, and to post--where I hope I'm helping some of the others out there feel...