NCGIRL

*vrrrooooooooommmmmm.... squeeeeal* It's a drive-by hugging! BIG HUGS! Hope you are feeling great today! *vvrrroooooooooommmmm*
~ Sarah :D

Thanks :) I think that what you said in your original post is true - obviously God has a reason and a plan for you. One of the other members on the forum said that the doctors at his hospital are specifically testing his blood in conjunction with ALS research, so I like to think that for each person who has to suffer through it, there is the possibility that they make some progress toward finding a cure.

I had my EMG two days ago and it was normal, so it appears I'm okay for the time being. I twitch basically everywhere and quite often, but I tell myself not to worry about that.

Again, I really admire your bravery and your spirit, please don't ever lose those things :)

Hi there - I decided to browse your profile after you replied to a thread of mine. You're the same age as I am - 34. Don't you love it when a doctor's only reason for saying you can't have ALS is because you're too young? I just wanted to say that you and your family are beautiful - I've looked at your photos, and you're so brave. I've been going out of my mind with ALS worry for the last few months. I hope that's all it ends up being...

I had stomach issues for one year efore my neuro symptoms started my hubby thinks one has nothing to do with the other but I think there is an immune inflamation response that happened with me

omg i have sibo similar to the inflamation you have and the moment I started meds for it my als reared its ugly head that is what I think caused my disease to

Did you get it yet?

Ah, I had it wrong but retried with the correct e-mail address. Sheesh! This is like pulling teeth! :)

I sent you an e-mail Donna. Hope it works!

Did you find me on FB yet? I can't find you there. Let's keep trying, k?

I'll have to look for you when I get home. I'm not finding you yet from my iPad Sweets. Fooie!