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munecagirl22 munecagirl22 is offline

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Showing Visitor Messages 1 to 10 of 12
  1. EGBAR
    11-06-2011 09:33 AM - permalink
    but you have not been diagnosed yet? was your emg clean.
  2. EGBAR
    11-03-2011 09:15 AM - permalink
    Hello I hope things are going well in your world today. Just wanted to drop a line and say HI.
  3. sya15
    10-05-2011 01:29 PM - permalink
    Thanks for your kind thoughts. It was such a relief to hear that very slim chance ALS. who would have thought I would be happy that it could be PLS. (much better than ALS) I hope you are doing ok. Hang in there hun things will work themselves out. Please don't take some statements made by others too heart. I think they are prob just fustrated because the are living with this terrible disease. And we really can't understand what they are going through. I don't think they intentionally mean to be hurtful. :)
  4. Kathylund
    10-03-2011 11:03 AM - permalink
    I don't think it's that people don't like you, I just think that you , as a am are driving them crazy, we have to understand, alot of them are living with ALS and when we come around saying that we have had neg, testing we are driving them crazy. They have there own problems and they have been trying to help us. That is a gift to us and we have to appreciate why they get so upset. I hope you start feeling better soon, it does not sound like you have it. Take care, kathy
  5. sya15
    09-15-2011 11:20 PM - permalink
    Keep staying positive and strong!!!! Live your life and try not to focus on whats going on. You are sooo young, many years ahead of you!!!
  6. sya15
    09-13-2011 10:49 PM - permalink
    How are you doing?
  7. sya15
    08-21-2011 01:02 PM - permalink
    you do not have ALS!!! ALS does not affect sensory. With MS you have to have 3 episodes comers and goes and plaques in brain. You don't. MRI neg. Did they test B12? everyone experiences muscle twitching.
  8. AndyDJX
    08-04-2011 01:00 PM - permalink
    Hey there-- sorry to hear about what you're going through. It's good that you're getting an EMG and NCV; that will give your doctors a whole lot more to work with. Hopefully they won't reveal any major issues. After the tests, they may not be able to tell you what is causing your problems, but they will be closer to being able to tell you what isn't. My next step will likely be a follow up with a neuro or at least my PCP. I've only been to the neuro's office twice in the past two years, and during my last visit she didn't even do basic strength tests or order and follow up tests. I might have to become more aggressive in seeking out answers again.
  9. sportsfan
    06-07-2011 11:18 PM - permalink
    hey mun, people dont realize that the odds of getting als is just as likely as ms. 1 n 1000.there is a young girl on this forum that has recently been diagnosed. i ve trying to get my ducks lines up,life ins. and long term care ins as well.Just in case.I dont know if i have als but the symptoms ae pointing n that direction.Have you had your cpk level checked, it s elevated with als.usually 2 to 3 times above normal.u can have that test done at your gp.Im hoping and praying for you.being so young the odds are lower for you.There is a syndrome called bfs.look it uo at thats what both of us email is best wishes.
  10. sportsfan
    06-06-2011 06:26 PM - permalink
    hey mun. girl im still twitching,my ankles feel weaker,my calves are almost 2 inches smaller than they used too,my legs feel like they are dead,my left side feels numb and like its getting weaker.I just got back from my gp to take another cpk test cause it wa elevated last test.I cant get into my nuero until july.I think ur right about most people dont go to the dr. until something major happens.You and I might be those people who are very in tune with their body and know when something isnt right.Plus the veterans on here are only trying to ease peoles mind about the possibility of someone having this crap.So when we say there s something going on they think we re crazy.I know somethings not right .My gp made a good point today, if i have als it wont be a mystery much longer it ll show up.And thats when most people go to dr.So my clean emg might be just to early too tell.

About Me

  • About munecagirl22
    What's your relationship with ALS/MND?
    I am interested in learning about ALS/MND.
    If diagnosed, when was the diagnosis?
    State or Province
    born 85 symtoms startd nov/dec 10 (twitching) feb 11 weakness kickd in with tremours, bad balance 11
    at home wifey for now..
    cats, hubbie, makeup, art, dancing, friends, church etc etc want to make a differnce


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  • Last Activity: 11-15-2011 09:16 PM
  • Join Date: 06-01-2011


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