Conversation Between munecagirl22 and sportsfan
Showing Visitor Messages 1 to 8 of 8
  1. munecagirl22
    10-01-2011 10:51 PM - permalink
    munecagirl22
    hello seen you ol other day how are you ? send me a message
  2. sportsfan
    06-07-2011 11:18 PM - permalink
    sportsfan
    hey mun, people dont realize that the odds of getting als is just as likely as ms. 1 n 1000.there is a young girl on this forum that has recently been diagnosed. i ve trying to get my ducks lines up,life ins. and long term care ins as well.Just in case.I dont know if i have als but the symptoms ae pointing n that direction.Have you had your cpk level checked, it s elevated with als.usually 2 to 3 times above normal.u can have that test done at your gp.Im hoping and praying for you.being so young the odds are lower for you.There is a syndrome called bfs.look it uo at bfs.com.hopefully thats what both of us have.my email is daddypix@aol.com. best wishes.
  3. munecagirl22
    06-06-2011 11:37 PM - permalink
    munecagirl22
    this fourm will not seem to let me send all my messages my email is munecagirl22@yahoo.clm
  4. munecagirl22
    06-06-2011 11:35 PM - permalink
    munecagirl22
    hello again sportsfan well atleast we have each other who completly understands...and i agree 100% with you, many many people blow off things going on w there body, things people say are small including myself last ur i was getting back spamas in my lowers back i blew it off to i hurt myself or have a little extra weight, and then in oct/nov i startd w twitching it wasnt every hour or every day as it is now, and they get worst they are mainly on my legs ,but they go everywhere from eyebrow to tippy toe, iam only 25 and they all say on here my age my age my age, well to ME thats Garbage in all the research ive done MND/ALS is one of the top diesases in the world they kill more then MS each year. may there just not many people to get on the net to express this. it can hit anyone at anytime, its a sporadic diease, i too also have the numbness and tingly, which maybe NOT be related BUT here where drs fixd carpel tunnels several times yet
  5. sportsfan
    06-06-2011 06:26 PM - permalink
    sportsfan
    hey mun. girl im still twitching,my ankles feel weaker,my calves are almost 2 inches smaller than they used too,my legs feel like they are dead,my left side feels numb and like its getting weaker.I just got back from my gp to take another cpk test cause it wa elevated last test.I cant get into my nuero until july.I think ur right about most people dont go to the dr. until something major happens.You and I might be those people who are very in tune with their body and know when something isnt right.Plus the veterans on here are only trying to ease peoles mind about the possibility of someone having this crap.So when we say there s something going on they think we re crazy.I know somethings not right .My gp made a good point today, if i have als it wont be a mystery much longer it ll show up.And thats when most people go to dr.So my clean emg might be just to early too tell.
  6. sportsfan
    06-03-2011 07:29 PM - permalink
    sportsfan
    hey munecagirl, mine symptoms started exactly 4 months ago.I had a charlie horse in my leg, but i didnt think too mch about it.Then my legs started feeling funny, then the twitches came on,mainly in my calf muscles,my calf muscles are also smaller than they used to be, my gf noticed also.Then my left fingers went numb and toes along with parts of my left leg.I just knew it was ms .But clean mris.I felt relived it wasnt ms but then i asked the nuero what n the hell is bothering me.he said make an appt and we ll draw some blood.But its an act of god to get into his office.I never dreamed in the beggining id could have als until the symptoms just wont leave.Here lately my legs feel like lead.if you need someone to talk to about this pls feel free to let me know.
  7. munecagirl22
    06-03-2011 07:17 AM - permalink
    munecagirl22
    hello sportfan
    thank you so much for your reply i just noticed this in my notifications:)... i had 2 MRIS with and wo contrast of brain and it showd nothing, but they were also only looking for MS, the dr and neuros ove been to have not been good and its a horrid mess to find new ones and go get referrals everywhere HAS to have referals not sure why?.. as iam self pay, i also had the LP which i got back yesterday, was normal. I also had spine and thoric MRI showd 8-9 white cicrlce ,but rasiologist report stated no plaqs or anything related to MS or degeneritve dis or damge done to back, so why all the spams??.. Neuro is June 20th, iam very very weak... and twitchng get worst everyday more stonger ones when laying down epically in the mornings today it was in my neck and leg , neck is new i still say i have MS.. but testing says, statrd twiching 5 mon ago blew it completly off then feb got super weak all of a sudden.. sorry this was so long, thanks for careing:)
  8. sportsfan
    06-02-2011 09:35 PM - permalink
    sportsfan
    hey munecagirl how how you holding up yoday.Im surprised however did ur mri s didnt suggest you have an emg as well.Your brain scan probaly would ve show something if als was attacking your brain stem.

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