Conversation Between munecagirl22 and Kathylund
Showing Visitor Messages 1 to 3 of 3
  1. munecagirl22
    10-03-2011 03:16 PM - permalink
    welll i do understand this i completly do but they got mad at me from my very 1st post and i di respect them i have been reading ur post too you dont sound like you have it either not at all. i know firsthand personal experience drs cant have all the answers bc sometimes those answers are jus not there yet in a clinical test or diagnostic test. just not just like emgs only show up neg when 50% of that nevre is gone in area tested not 10-or25% but a whole whopping 50%... have you ever visited the alstdi site and fourms read over some peoples stories.. one guy rlshauffer and another he had als for 4yrs test all come back ok went to 4 neuros and 2 als clininc mayo finally told him and just now yrs laters his emg came up clean.. thats where i get my info from... but heck maybe i dont but i sure have the same symtoms of als patients rather its als or not
  2. Kathylund
    10-03-2011 11:03 AM - permalink
    I don't think it's that people don't like you, I just think that you , as a am are driving them crazy, we have to understand, alot of them are living with ALS and when we come around saying that we have had neg, testing we are driving them crazy. They have there own problems and they have been trying to help us. That is a gift to us and we have to appreciate why they get so upset. I hope you start feeling better soon, it does not sound like you have it. Take care, kathy
  3. munecagirl22
    10-02-2011 11:59 PM - permalink
    just want to know many others do not like me on here as if you cant tell by my threads or post ,but i have read yours and i cant say i have the same symtoms but can say i know EXACTLY how you are feeling about maybe haveing als and being in utter limboland its horrrriiibbblllee.. and iam the troll.. lol.. but iam so sorry i dont wish this feeling on anyone. and i myself cant kick it i dont have this diease its not been long enogh i dont think for me and my symtoms uhh...feel free too message me

All times are GMT -5. The time now is 01:45 AM.


Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016