Mulino Bianco is on a distinguished road

Mulino Bianco Mulino Bianco is offline

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Showing Visitor Messages 1 to 3 of 3
  1. monster
    01-14-2013 12:17 PM - permalink
    monster
    hi, I heard from my friend in France. She gave me two links https://www.facebook.com/groups/arachnoiditis/

    is a facebook link and the other
    http://health.groups.yahoo.com/group/ARACH_FRIENDS/?v=1&t=directory&ch=web&pub=groups&sec=dir&slk=2

    I have another friend who is on the yahoo one. I really hope you find some answers to your problems. Let me know if I can do anything else,
    take care
  2. monster
    01-13-2013 01:56 PM - permalink
    monster
    Yes, true AA does cause severe pain but I'm not sure what stage of the disease you are at. I e mailed my friend in France, when she gets back to me about the support group I will pass it along. She is very knowledgeable in AA but very sick due to it. I will see if she knows of someone else who might be able to help.
    I know all these neurological problems are scary, I am scared too, but sometimes it takes a long time for the doctors to figure it out. Easier said, I know, but try to hang in there.
    The people here are really trying to help you. I'll be in touch.....
  3. monster
    01-13-2013 11:22 AM - permalink
    monster
    I have some friends who have Arachnoiditis too. Two of them got it from and ESI gone bad, Some after surgery.
    These people have [B]some[/B] of the same symptoms as you, I am not saying all of your symptoms are from the AA. There is a support group for AA that has many knowledgeable people in it.
    There is also a doctor in Germany, Dr Warnke, who is working with AA and having some success.
    hope you find some answers for your health issues.

About Me

  • About Mulino Bianco
    What's your relationship with ALS/MND?
    have arachnoiditis but new symptoms of als (?)
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Parma
    State or Province
    Lombardia
    Country
    IT

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  • Last Activity: 05-13-2013 08:46 PM
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