Mulino Bianco is on a distinguished road

Mulino Bianco Mulino Bianco is offline

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  1. monster
    01-14-2013 11:17 AM - permalink
    hi, I heard from my friend in France. She gave me two links

    is a facebook link and the other

    I have another friend who is on the yahoo one. I really hope you find some answers to your problems. Let me know if I can do anything else,
    take care
  2. monster
    01-13-2013 12:56 PM - permalink
    Yes, true AA does cause severe pain but I'm not sure what stage of the disease you are at. I e mailed my friend in France, when she gets back to me about the support group I will pass it along. She is very knowledgeable in AA but very sick due to it. I will see if she knows of someone else who might be able to help.
    I know all these neurological problems are scary, I am scared too, but sometimes it takes a long time for the doctors to figure it out. Easier said, I know, but try to hang in there.
    The people here are really trying to help you. I'll be in touch.....
  3. monster
    01-13-2013 10:22 AM - permalink
    I have some friends who have Arachnoiditis too. Two of them got it from and ESI gone bad, Some after surgery.
    These people have [B]some[/B] of the same symptoms as you, I am not saying all of your symptoms are from the AA. There is a support group for AA that has many knowledgeable people in it.
    There is also a doctor in Germany, Dr Warnke, who is working with AA and having some success.
    hope you find some answers for your health issues.

About Me

  • About Mulino Bianco
    What's your relationship with ALS/MND?
    have arachnoiditis but new symptoms of als (?)
    If diagnosed, when was the diagnosis?
    State or Province


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  • Last Activity: 05-13-2013 07:46 PM
  • Join Date: 01-10-2013

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