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Ms. Pie Ms. Pie is offline

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Showing Visitor Messages 1 to 10 of 1109
  1. JTorm
    06-10-2013 10:59 AM - permalink
    JTorm
    Thanks Ms. Pie... i do hope so. Maybe the s1 root irritation bilateral they found on emg is causing my calves denervations.. who knows.. i´m going to try to get an appt this or next week..
  2. JTorm
    06-08-2013 10:41 AM - permalink
    JTorm
    Hi Ms. Pie ;) .. well i was feeling weird a month ago.... so i went to a neurologist.. she send me lots of exams.. and well EMG was "dirty" in the conclusions there is not a diagnosis of MND/ALs yet but im scared about some comments about denervation... so i'm trying to get some answers..
  3. JTorm
    06-07-2013 07:08 PM - permalink
    JTorm
    Hi Martha, i don't know you but i want to meet you since i see you in the blogs and you are always with a great attitude... I'm Juan From Panamá.. (central america) and in the processes of diagnosis... :) have a great day.
  4. skipper66
    06-02-2013 04:43 PM - permalink
    skipper66
    Hi Marta,
    I'm doing ok. It looks like I'm still going to be getting divorced though unfortunately. It's really strange because we get along great now that I don't live there and spend time alone together and then also with the kids. I see us at some point reconciling but I might be a dreamer. I just take it one day at a time. Sorry. to hear you are have a few more difficulties. My dad isn't good but seems to be staying at a standstill on his progression right now. He is enjoying going to see my two boy's baseball games. The one's that haven't gotten rained out that is. We are still working on the caregivers yet for dad. We will probally have to hire more then one and they will have to stay the night with him. Take care, Kim
  5. skipper66
    05-27-2013 05:25 PM - permalink
    skipper66
    Hi Marta,
    How are things going lately for you? My sister lives in Dallas, Texas and was here this past weekend to visit dad. I had a rummage sale and did reasonably well. I had it both Friday and Saturday. Saturday, was really slow though. Mydad's caretaker who has been living with him has decided he wants to quit to do other things. He will stay until we find someone thankfully. We interviewed one guy already who seems interested and has taken care of some relatives of ours in the past. Hopefully, we will find someone good and it will work out. Take care, Kim
  6. EGBAR
    05-20-2013 03:52 PM - permalink
    EGBAR
    I am also in a PWC talking is affected but still doing OK I guess. Sorry I haven't been on the site, all the people acting like they have ALS and asking stupid questions irritates me. I am still here, glad to here from you
  7. skipper66
    05-15-2013 04:01 PM - permalink
    skipper66
    Hi Marta,
    How are you doing? I'm doing better. I'm still supposedly getting divorced but he's dragging his feet on. We are getting along great now that we are separated and not living under the same roof. We do alot of stuff together with the kids and just the two of us. I'm just taking it one day at a time. It's less stressful that way. My dad seems to be doing well lately considering this horrendous disease. He went to our youngest son's baseball game last night. Unfortunately, my son's team lost again by quite a bit. But, dad still had fun and was glad to get out of the house. Take care, Kim
  8. johnnyliverpool1
    05-13-2013 09:06 AM - permalink
    johnnyliverpool1
    loves it when you post me ......johnny
  9. pattyb
    05-11-2013 07:23 PM - permalink
    pattyb
    Well my brother is using a walker still but very slow walking when in his home. When he goes anywhere he has to use a wheelchair. He's stubborn and doesn't want help but is starting to realize he needs it. He doesn't leave the house very ofte just for dr appts. He is giving up and I hate it. He's also starting to slur his words a little.mhope you are doing as well as can be expected. I talk to my brother about you quite often thinking it may help him stay positive.
  10. Cricket
    04-21-2013 03:53 PM - permalink
    Cricket
    Hello there! Hope you are having a good day.

About Me

  • About Ms. Pie
    City
    Colorado
    State or Province
    CO
    Country
    US
    How has ALS/MND impacted you?
    I have been diagnosed with ALS/MND Fooie I say.
    When were you diagnosed?
    10/2010
    Biography
    Born in MI. Moved to TX in 78. Married to love of my life in 98. Moved to CO in 02.
    Occupation
    Retired Administrative Assistant in a CPA firm
    Interests
    Was: skiing,hiking,nature,house plants,gardening. Is: reading,family,friends,people,music,plants, +
  • Signature
    "Create in me a clean heart oh God, and renew a right spirit within me." Psalm 51:10

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  • Last Activity: Yesterday 12:32 PM
  • Join Date: 03-26-2011

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View Ms. Pie's BlogRecent Entries
Latest Blog Entry

Posted 08-20-2011 at 05:51 PM by Ms. Pie Comments 1
Posted in Uncategorized
I've got to say that I didn't really think too much about ALS before I started having leg weakness last summer. I knew about it and knew it was a monster of a "condition" and the last thing in the world I wished for, but didn't really think about it much since I never knew anyone with it.

I understand when people give me that slack jawed "Wha?" look. Or say something apparently ignorant like "oh, is it like Alzheimer's?" ALS just isn't a well known...

Posted 06-14-2011 at 02:15 PM by Ms. Pie Comments 8
Posted in Uncategorized
I feel like I can handle anything that comes along. The hardest part is what this news does to people that I care about. It breaks my heart to see them cry and their hurt.

Do I lie and say it's back trouble to concerned aquaintences? I just don't know what to say when they press for an explanation. I've tried the "It's a Motor Neuron Disorder" and that works sometimes. I just don't know.

Sometimes I just want to lock myself in the house and not talk...
Recent Comments
Yep. I find that people...
Posted 12-17-2011 at 09:35 PM by mysticunicorn66 mysticunicorn66 is offline
Marta, just discovered...
Posted 08-01-2011 at 10:26 AM by Sequoia Sequoia is offline
Thanks Shon and Jack....
Posted 07-10-2011 at 12:45 PM by Ms. Pie Ms. Pie is offline
marta just tell them...
Posted 07-08-2011 at 03:10 PM by jackberry jackberry is offline
yes it does bite. i...
Posted 07-05-2011 at 10:42 PM by smwelder smwelder is offline

    
   
   
   
   
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