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Visitor Messages

Showing Visitor Messages 1 to 10 of 120
  1. Danijela
    11-03-2012 02:32 PM - permalink
    Danijela
    Thank you. I think of you often too. It's been a year or so for you... Hope you are well and always good to see/hear from familiar faces and 'old timers'. X
  2. brooksea
    09-24-2012 09:48 PM - permalink
    brooksea
    Thanks, Missy.
  3. skipper66
    08-22-2012 04:24 PM - permalink
    skipper66
    Thinking of you today and sending you a hug.
  4. Syekick
    07-26-2012 10:17 AM - permalink
    Syekick
    Thank you Miss. I'm retired Navy Chief Petty Officer. We've lived and traveled all over too. So far, we have been dual insured since retirement and getting what we needed has not been a problem. Of course Medicare A/B kicks in November 1 and Tricare will be our secondary then. That may not be great. My power wheelchair is on order. I have a bipap, cough assist and should have my feeding tube by the end of this month. Hoyer lift I will spend the extra money for an electric model to reduce the wifes burden. I've decided against the trac and met agreement with all family members. It is what it is! Life is good and fun every day. Thanks again.
  5. skipper66
    07-04-2012 01:09 PM - permalink
    skipper66
    I apologized to C.J. on this forum. I didn't mean for my words to come out as if I were bashing her in any way. I truly want her son and her to find peace and start to heal. I am so sorry for all they had to endure. I will think more before I post in the future. I'm sorry if I offended you or anyone else on this site. Kim
  6. Ms. Pie
    07-03-2012 05:24 PM - permalink
    Ms. Pie
    Hugs to you Missy!
  7. dberbicegirl
    06-26-2012 10:21 AM - permalink
    dberbicegirl
    My brother's speech is deteriotating. He lives in St. Lucia and does not have much available service there. What can I advise him to do. The neurologist prescibed Rilutek, but he does not want to take it. Is it advisable? The coughing has subsided but in the event it returns should I invest in the BiPap?
  8. dberbicegirl
    06-25-2012 03:12 PM - permalink
    dberbicegirl
    Hi Missy:
    Can I ask you a few questions pertaining to the progression of the disease. If it is too painful to talk about I can understand.
  9. sadiemae
    06-12-2012 10:20 PM - permalink
    sadiemae
    Sending HUGS
  10. Toto's Dorothy
    06-01-2012 12:00 AM - permalink
    Toto's Dorothy
    Missy,
    When I first camve here in 2010, I never saw the memorial section. For whatever reason. And then after a while I noticed, but didn't post. Unfortunately, its now the first thing I look at. I wish it wasn't so. I had a funny feeling the day Diane passed away. I went to her vm board and found the note. When Ken went down, the sinking feeling came back. And yesterday when I posted about Al, I knew somehow we would get the answer today. I'm praying these feelings leave me for a while.
    As for Chistopher, I have that feeling but don't have a clue as to where to start. Hopefully his wife will let us know. I pray I'm wrong.
    Thanks for making sure I'm not behind the times.
    Toto

About Me

  • About Miss
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    04/2010
    City
    Way Down South
    State or Province
    In the Land of Cotton
    Country
    US
    Biography
    Widowed by ALS after 22 years, Mother of 2, Friend of Many
    Occupation
    Greeting Card Merchandising
    Interests
    Shih Tzu's, Scouting, Reading
  • Signature
    Missy

    My husband LIVED with ALS
    born:4/1961, onset:11/2008, diagnosed:4/2010, died:8/2011

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  • Last Activity: 02-27-2014 10:56 PM
  • Join Date: 04-11-2010

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