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Visitor Messages

Showing Visitor Messages 1 to 10 of 65
  1. Danijela
    01-26-2013 04:36 PM - permalink
    Hi, if M goes to hospice try to stay clear from 'night sedation'. It is heavy duty and I doubt L would have made it out last year had I not put a stop
    to it after two nights. D
  2. Danijela
    01-17-2013 04:42 PM - permalink
    Thanks for bday wishes for S!
  3. Danijela
    01-17-2013 04:41 PM - permalink
    Hi. Yes we are with Pulse. We waited for 6 weeks before they had staff in place. Changed a few carers. We have 2 good carers but need the third one and they have been struggling to recruit for 1 year! If I was doing it again I would insist on a local agency that provides complex care / Pulse offices are in Manchester. D
  4. Danijela
    12-29-2012 05:22 PM - permalink
    Thank you. Hope all is well and you managed to enjoy some aspects of festivities. We are getting through, somehow. X D
  5. johnnyliverpool1
    12-25-2012 08:21 AM - permalink
    ta for the yuletide greetings. mick and ange....another hour and am tucking into the turkey,,,,,have a good un and god bless...johnny
  6. olly
    12-24-2012 12:43 PM - permalink
    Hi ang,so good to hear from you.......we should really be in touch more ofton....new years resolution lol.
    How are you? how's your husband doing?
    Who is that adorable kitty,is it yours?....just adorable.
    Wishing you all the best to you and your family (((hugs)))caroline.
  7. Danijela
    08-22-2012 04:51 AM - permalink
    Hello. Sorry to hear your time is tough too. When was the peg fitted? L can still eat everything (e.g. fried breakfast) but has one PEG feed per day, when he is resting. He too is on the bipap almost 24/7. He takes short breaks, to give his face a break, for toilet, shower and good night kiss with Stan. Did you come to Bolton hospice? Day do day patient, so he could go there one morning per week to give you a break. Must be tough not having carers, I can just imagine. But having people in your house all the time is a nightmare too Ang. Dani
  8. Danijela
    08-20-2012 05:40 AM - permalink
    Hi Ang,

    not seen you much around here. How are you? Dani
  9. johnnyliverpool1
    06-14-2012 06:36 PM - permalink
    hi both......looking forward to the england game tomorrow.....question mark,,,,cant do marks on this keyboard cos its jap.......think we will find out if were any good tomorrow....am good and i hope mick is even better and even more important ang ..that you r even better cos carers do such important work...am rambling now...old age....god bless johnny
  10. Danijela
    06-12-2012 06:32 AM - permalink
    Thanks for stopping by. Just doing what we can...stealing little moments of privacy... Hope you are ok. Dani

About Me

  • About Mick n Ang
    What's your relationship with ALS/MND?
    Mick has MND, Ang is his wife
    If diagnosed, when was the diagnosis?
    State or Province
    Mick is a gorgeous 49 year old 6ft 2" hunk (Well I think so anyway )
    Mick is now retired, Ang is an office worker,now from home
    Pets, Films


Total Posts
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General Information
  • Last Activity: 01-22-2014 07:08 AM
  • Join Date: 06-30-2010


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