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Visitor Messages

Showing Visitor Messages 1 to 10 of 345
  1. marypat
    03-14-2013 01:18 PM - permalink
    marypat
    hello mare,
    i'm sry my brain moves faster than my click n type. i use a shane's brace. it's one i heard about on here it is an out of pocket exspense. if i remember right it was 80$. i am interested in the headrest for later on. in the meantime i had my ot adjust my pwc headrest lower so it is almost cradling my head at the occipital portion. much lower than traditionally used, the ot's suggestion. i will give it a try. good luck. i'd love to hear how it works out. also if you want me to post a picture let me know tho they have them on their website of course mp
  2. Okie2
    03-14-2013 11:20 AM - permalink
    Okie2
    Hello mare. Yes to a degree Metamucil seemed to help. My family dr said it would make stool more firm and bigger instead of softer and looser. Or as my daughter describes some poop as soft serve! Hahaha!
  3. KKay
    07-13-2012 04:11 PM - permalink
    KKay
    Hi Marianne! Thank you for touching base with me. It was good to see your message when I came back. I took a little time off. Everyone is ok, but alot has been happening in these last six months. I like your renovation pictures! Your home is beautiful. Can you explain how the rail on your ceiling works and who the manufacturer is? It looks interesting! I hope all is well with you. Kirsten
  4. minnesota
    06-26-2012 09:40 AM - permalink
    minnesota
    Mare,
    Nice pics. You guys have been busy. The renovation looks superb. Thinking about you and Jim! Hugs, Marie
  5. ksspeicher
    06-22-2012 11:16 AM - permalink
    ksspeicher
    Thank you for posting photo's - it is extremely helpful to see the accomodations that you have made to your home. My brother was diagnosed with ALS in March of this year, we moved him into our mother-in-law suite and are just beginning the process of looking at what we will need to have done to our home to make it accessable, functional and comfortable for him. It was great having the opportunity to actually see what can be done. Thank you!
  6. HelenL
    06-20-2012 12:19 PM - permalink
    HelenL
    Hi Mare, thanks for your note about the bathroom... it is on an outside wall, directly underneath the full bath upstairs. I'm not sure it's wide enough, though it's 6 ft. wide once the built in cabinets come out. The next issue is then where to put the w/d...

    I have a file of everyone's comments, plans and pictures, which I'll go through if/when this gets going. I really need at least a handicap toilet if I can't squeeze the shower in!

    hugs,

    Helen
  7. Okie2
    06-08-2012 10:02 AM - permalink
    Okie2
    I know confusion, it is an old friend!
  8. Okie2
    06-07-2012 01:38 PM - permalink
    Okie2
    Yes fun indeed. My dr said it is not a symptom, but it does seem strange. Everything else is getting weaker why not that muscle?
  9. sadiemae
    06-07-2012 12:39 PM - permalink
    sadiemae
    HI!! Hoping for a good summer.
  10. tmasters
    04-21-2012 05:10 PM - permalink
    tmasters
    Haha my "avatar" picture was deleted somehow and I can't fix it! Thanks for posting.

About Me

  • About mare
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    00/0000
    City
    Lafayette Hill
    State or Province
    PA
    Country
    US
    Biography
    Husband Jim passed away Feb. 3, 2015, peacefully & surrounded by love.
    Occupation
    domestic engineer !

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  • Last Activity: 02-05-2015 05:49 AM
  • Join Date: 06-05-2008

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