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Showing Visitor Messages 1 to 10 of 17
  1. April E
    08-03-2018 06:41 PM - permalink
    April E
    Hi again, Kim,

    I just wanted to say I hope you don't end up diagnosed with anything serious. I just re-read what I posted and I realized it was pretty abrupt.

    Have you had your thyroid checked? Lyme disease?

    Hopeful for the both of us!

    April
  2. April E
    08-03-2018 05:05 PM - permalink
    April E
    Hi Kim...

    I'm so sorry you didn't feel as if your concerns were properly addressed. I understand exactly how you feel.


    I vacuumed a few minutes ago and am now having twitches in my right upper arm, which is the arm I used to push the vacuum. I never had twitching after vacuuming before all this started. The other twitching continues randomly. I know I have decreased endurance and decreased strength, but as I've been a nurse for 25 years now, I was very strong physically and was able to spend 12 hours on my feet without batting an eye. So the difference, while obvious to me, is imperceptible to physicians. As a nurse, I'm also aware that people with health anxiety are often viewed through a different lens. I'm ashamed to admit that I've been guilty of that myself.

    I have a strong suspicion that it's only a matter of time until I/we end up in the "newly diagnosed" section. I pray i am wrong on both counts.

    Keep in touch!

    April
  3. Lostandalone
    08-02-2018 06:28 AM - permalink
    Lostandalone
    Having a terrible sore throat where hurts to talk. Been to ENT confirmed hyper addiction of larynx and have me in voice therapy. Now why all of a sudden is my voice hoarse and constriction of voicebox? Also, I have had increasing stiffness in fingers. Woke one night with one finger and every day seems to be increasing to other fingers. I am also waking with fingers going numb. The twitching won’t stop and now cramping. Had two Charlie horses in calf last night. I’m scared out of my mind . And what’s most frustrating is everyone seems to be brushing me off and putting all of this on anxiety. Of course I’m anxious but all this isn’t from that. I wish it were. It’s like doctors won’t take you serious if have anxiety.

    I’m so fearful and cry all the time. I can’t face this disease. It’s just me and my son.

    Kim
  4. Lostandalone
    08-02-2018 06:28 AM - permalink
    Lostandalone
    My appointment was uneventful. He found some assymetric reflexes that he said were minor but didnít find any clinical weakness which I know anyway. He said he is more of a clinical neurol and doesnít do much testing. I was hoping for a full emg to get reassurance. I am so convinced as not sure what else could be causing my increasing issues.
  5. April E
    07-31-2018 09:38 PM - permalink
    April E
    Hi Lostandalone...

    Wondering how yesterday's neuromiscular appointment went. I hope you received convincing reassurance that all is indeed well.

    April
  6. April E
    07-27-2018 10:23 AM - permalink
    April E
    Just checking in. I hope you are well. Have you had any new symptoms? Please let me know what the neurologist has to say after your upcoming appointment.
  7. April E
    07-18-2018 12:16 AM - permalink
    April E
    Lostandalone-

    Thanks for responding. It's nice to hear from someone who understands what this is like.

    I know exactly how you feel. I would love to be able to believe that all is well, but I know for a fact that all is NOT well. There are visible physical indicators that all is not well. There are invisible subjective indicators that all is not well. It's enough to make you believe you are crazy. I had to get away from my life for a while in order to keep from being devoured by my personal depression and anxiety monster. I don't have any future appointments scheduled as of now. I'm tired of trying to get someone to listen. I will regroup and try to decide where to go from here.

    I hope and pray we are both wrong. I would truly prefer to be crazy.

    April
  8. April E
    07-17-2018 02:41 PM - permalink
    April E
    Lostandalone...hello. I was wondering how you are doing after all your testing. I see you are still on here a lot, as am I. I continue to have worrisome/worsening symptoms. I don't know what to do besides wait for something to quit working before returning to the neurologist. I hope you are well.

    April
  9. ShiftKicker
    07-09-2018 03:35 PM - permalink
    ♥ ShiftKicker
    Please check your PMs for a message. Thank you.
  10. Atsugi
    06-19-2018 06:48 AM - permalink
    ♥ Atsugi
    Chk yr PMs.

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  • About Lostandalone
    What's your relationship with ALS/MND?
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