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♥ lgelb lgelb is offline

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Visitor Messages

Showing Visitor Messages 1 to 10 of 131
  1. beauty4everyone
    Yesterday 02:15 PM - permalink
    beauty4everyone
    Hi, There! You're so sweet. Thanks for helping, it's greatly appreciated. I think I got it right this time. (I hope so). It's about time scammers were tormented, too. I just got a phone call from someone trying to tell me social security want's me to call them. Baloney! They're going to scare a lot of elderly people. That's so MEAN. Hope people enjoy the link. I think James is great. Sic 'em James. Let me know what you think of it. Have a great day. B.
  2. beauty4everyone
    Yesterday 01:21 PM - permalink
    beauty4everyone
    HELP! HELP! My post got away from me. Can you delete my recent post with Lt on subject. I don't want people to use valuable time when there's nothing in it. I must have twitched and leaned on a key. Thanks much! Sorry! B
  3. NinaP
    09-25-2018 07:40 AM - permalink
    NinaP
    When i used to bend down, my muscles used to hurt the next day, now i dont feel them as if they dont exist. If i bend my left leg immidiately hurts and cant stand my weight. I remain the same weight and its strange because i can feel i have lost weight on my legs and hands. Iam scared to go to the neurologist. So scared because i dont want to be sick at the same time as mum, its going to break my family down, already we are so broken because these years were supposed to be mums rest. Just wanted to tell you my whole story in order to get an idea.
  4. NinaP
    09-25-2018 07:40 AM - permalink
    NinaP
    Now i cant because it starts hurting at once. So every year when the weather is changing or iam tired my leg hurts/feels very sore, weak, very weak, also when my period comes. I have come to get used to it. In Summer 2017 when my mums issues started we both went to the doctor to have tests since my leg never stopped bothering me. Of course my mum issues escalated very seriously and soon.As i already described in my posts in the general threads this time i feel different. I feeling like iam losing muscles, my legs have dissapeared, my hands, fingers have become very thin and my right leg which was very strong now is getting weak too. I get these feelings like something goes up and down in my legs when i walk my left leg slips behind.
  5. NinaP
    09-25-2018 07:39 AM - permalink
    NinaP
    Didnt want to bother others with my story since i keep posting over and over. I wanted to give you my full story. My dad was sick with serious health problems for 6 years. My mother was the one taking care of him. He died in 2013, in 2014 after a heavy cold, and being very tired from my dads issues and everything that we had to do after his death, i felt weak all over, numb, had feeling of weakness in hands legs everything, I could see my legs and hands moving, i had diffuclt eating lost 10 kilos. I went to every doctor did all the tests, everything came back fine. The only doctor i didnt visit was a neurologist, i didnt know, no doctor told me so. They all said it was being tired from everything. Slowly i came back to my life but with the difference of my left leg feeling weaker than my right. My orthopedist at the time said there was no weakness and everything looked fine, but my left leg was never the same after that. I must say i used to sleep on my left leg for years.
  6. KiraM
    09-13-2018 09:34 PM - permalink
    KiraM
    I try so hard, I really do, but the unknowing is what gets to me. And of course the horrid symptoms. I’d rather know than not know..I just wish my neuro would’ve given me an EMG after seeing my twitching. I told my mother how this is taking over my life and she said she’d get me an EMG, so that I can move on. I’m just hoping for the best. ); thank you Laurie
  7. KiraM
    09-13-2018 01:43 PM - permalink
    KiraM
    I’m not sure how to reply to your message through yours. But thank you Laurie, upon reading countless threads I always see you reassuring people and comforting people. I’m so thankful for that. I’m seeing a therapist at my school today so hopefully that helps. What I hate is that even when I’m feeling relaxed or trying to sleep, the twitches are there, and don’t go away. I guess I just have to wait it out but what worries me is that I do have a feeling of weakness that started in my left leg, to my left arm, to my left side of neck, to my right leg. What scares me is that the arm with the least amount of twitching (right arm) feels normal. I’m just scared of what’s to come, I wait for a morning with improvement but have yet to have one..
  8. spacecowboy000
    08-14-2018 01:11 PM - permalink
    spacecowboy000
    Hey Laurie....I wanted to know if I could pm you about a family member...
  9. madmarlon
    08-06-2018 05:24 AM - permalink
    madmarlon
    Laurie, How do I send PMs to you?
  10. COSister
    08-04-2018 11:09 PM - permalink
    COSister
    Wondering about a neck brace for Kay. Azgirl. Do you have any advice for us? Thanks. Marcia. Kayís sister. COSister. Thanks. My cell (mod removed for privacy).

    Think Kay hasnít wanted one. Fear of choking. Spitting constantly now. So maybe canít be any help?

About Me

  • About lgelb
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    09/2009
    City
    Seattle
    State or Province
    WA
    Country
    US
    Biography
    My husband, who died November 2014, was born with Marfan syndrome, later had diabetes and ALS
    Occupation
    Exp. in hospitals, clinics, devices, pharma, managed care. MPH, Board-Certified Patient Advocate.

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  • Join Date: 11-05-2009

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