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♥ lgelb lgelb is offline

Extremely Helpful Member

Visitor Messages

Showing Visitor Messages 1 to 10 of 109
  1. MindyL
    12-02-2017 07:00 PM - permalink
    MindyL
    Can you help me please? I feel forward and awkward asking for your help. I posted in do I have ALS forum. Sorry if this is not where to ask for help.
  2. blue sky
    11-16-2017 11:07 AM - permalink
    blue sky
    Hello Laurie,

    I am sorry for your loss.
    I had a question regarding the experiences during the night. I found it very difficult. I was wondering if you think having a new communication device at night will help the situation?
  3. Staceyg
    11-12-2017 03:05 PM - permalink
    Staceyg
    Hi. I'm sorry to ask for help. Can you look at my post and give me your advice. I have only looked a a few posts and your advice is amazing and thorough. Thank you
  4. running1203
    10-22-2017 04:54 PM - permalink
    running1203
    Hey Laurie,

    I was wondering if you could help me with something? I am a 25 year old male with body wide fasciculations (literally randomly everywhere), no weakness, no atrophy. My neuro found hyperrefelxia in my left knee. Could that mean ALS? Especially without weakness? He wants to do an MRI to rule out MS. He said he didn't think ALS, but I find the twitches and asymmetric hyperreflexia very worrisome.
    Thank you very much for your time.
    Cheers.
  5. Becazican
    10-18-2017 09:57 PM - permalink
    Becazican
    sorry to bother you but i was wondering if you heard how vince(blue and gold) was doing , i see he hasn’t posted since aug and i use to follow him on bfs forum it last few posts broke my heart. If you can drop me a note if you know how he’s is or if he has passed on.
  6. TomSanti
    09-26-2017 02:12 PM - permalink
    TomSanti
    Hi Laurie,

    I'm fairly new to these boards there seems to be that there are an awful lot of youngsters posting today, is this typical?
    Really enjoy reading your posts,

    Be well and God bless,

    Tom
  7. PepperJack
    09-18-2017 02:04 PM - permalink
    PepperJack
    Hi lgelb, I couldn't find a way to message you directly so I apologize for this visitor post. I am not changing my profile status as I registered "for" my husband so the account is both of us so when you see posts, it's most likely him asking or commenting. I am so sorry for your loss. This diagnosis has certainly been a devastating blow to our family. Thoughts and prayers are with you.
  8. weathersb
    09-09-2017 01:20 PM - permalink
    weathersb
    stickies where are they???
  9. profeJ
    08-21-2017 02:35 PM - permalink
    profeJ
    Thank you!!!!!!

    Happy Eclipse Monday to you and yours.
  10. atcollins
    08-18-2017 03:44 PM - permalink
    atcollins
    I wanted to say thank you for your reply on my post. I read it a lot to assure me. My healthy anxiety got the best of me fore sure I needed to be told your going in circles and wasting peoples time. My apologies I will continue to pray for all those suffering with this disease.

About Me

  • About lgelb
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    09/2009
    City
    Seattle
    State or Province
    WA
    Country
    US
    Biography
    My husband, who died November 2014, had ALS, Marfan syndrome and diabetes
    Occupation
    Research & commercial roles in health care, medical equipment, managed care & biopharma

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  • Join Date: 11-05-2009

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