lgelb's Profile Picture
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute

Forum Moderator

♥ lgelb lgelb is offline

Extremely Helpful Member

Visitor Messages

Showing Visitor Messages 1 to 10 of 105
  1. Becazican
    10-18-2017 08:57 PM - permalink
    Becazican
    sorry to bother you but i was wondering if you heard how vince(blue and gold) was doing , i see he hasn’t posted since aug and i use to follow him on bfs forum it last few posts broke my heart. If you can drop me a note if you know how he’s is or if he has passed on.
  2. TomSanti
    09-26-2017 01:12 PM - permalink
    TomSanti
    Hi Laurie,

    I'm fairly new to these boards there seems to be that there are an awful lot of youngsters posting today, is this typical?
    Really enjoy reading your posts,

    Be well and God bless,

    Tom
  3. PepperJack
    09-18-2017 01:04 PM - permalink
    PepperJack
    Hi lgelb, I couldn't find a way to message you directly so I apologize for this visitor post. I am not changing my profile status as I registered "for" my husband so the account is both of us so when you see posts, it's most likely him asking or commenting. I am so sorry for your loss. This diagnosis has certainly been a devastating blow to our family. Thoughts and prayers are with you.
  4. weathersb
    09-09-2017 12:20 PM - permalink
    weathersb
    stickies where are they???
  5. profeJ
    08-21-2017 01:35 PM - permalink
    profeJ
    Thank you!!!!!!

    Happy Eclipse Monday to you and yours.
  6. atcollins
    08-18-2017 02:44 PM - permalink
    atcollins
    I wanted to say thank you for your reply on my post. I read it a lot to assure me. My healthy anxiety got the best of me fore sure I needed to be told your going in circles and wasting peoples time. My apologies I will continue to pray for all those suffering with this disease.
  7. profeJ
    08-17-2017 03:03 PM - permalink
    profeJ
    Greetings from Santa Fe, NM

    I hope you're well.
  8. Albert1976
    06-09-2017 07:06 AM - permalink
    Albert1976
    Hi, My Neurologist's name is Aziz Shaibani. He is located in the medical center in Houston and is a neuromuscular specialist.
  9. lynneb
    05-28-2017 05:26 PM - permalink
    lynneb
    Several have told me you are the respiratory guru :-) I'm having difficulty adjusting to my bipap. I'm 66 yr old with bulbar onset ALS. My speech began to slur in April 2014. In July 2015 slurring was worse and some swallowing issues - received a PLS diagnosis. In January the diagnosis changed to ALS. The pulmonologist at the ALS clinic encouraged a bipap. My FVC is 72%. (I know that my breathing is compromised but I still walk 1.5 miles on my treadmill every morning w/o stopping in 30 minutes and can walk a flight of stairs w/o stopping) The bipap was delivered three weeks ago. Initially it was so drying I could only stand it for 10 min - throat would be raw. The pulmonologist ordered a humidifier - delivered a week ago. It makes the process more bearable but I can only last about 30 minutes at a time. I've noticed if I use it close to bedtime, I have more coughing after I get horizontal. Any suggestions? Thanks
  10. lilac
    05-27-2017 11:20 PM - permalink
    lilac
    Laurie,
    I have not posted on the site in some time, but am now looking for some specific advice about my PALS' respiratory decline and whether we need to tweak bipap settings. I cannot figure out how to send you a private message, and so am trying to reach you this way (visitor message). Please let me know how best to contact you. I'll do my best to describe our predicament and my questions. Thank you.

About Me

  • About lgelb
    What's your relationship with ALS/MND?
    I lost a loved one to ALS/MND.
    If diagnosed, when was the diagnosis?
    09/2009
    City
    Seattle
    State or Province
    WA
    Country
    US
    Biography
    My husband, who died November 2014, had ALS, Marfan syndrome and diabetes
    Occupation
    Research & commercial roles in health care, medical equipment, managed care & biopharma

Statistics

Total Posts
Albums
Visitor Messages
Total Thanks
General Information
  • Join Date: 11-05-2009

Friends

Showing Friends 1 to 10 of 31

All times are GMT -5. The time now is 06:51 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016